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Parkinson's Disease Clinical Trials For posting and discussion of clinical trials related to Parkinson's Disease, and for the Parkinson Pipeline Project. All are welcome. |
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03-16-2012, 05:33 PM | #1 | ||
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In Remembrance
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As we watch another treatment disappear, instead of continuing on to its final conclusion of being pronounced safe and effective or not, the prematurity and length of time, as other [almost all?] treatments are experimented with is not held up waiting for its efficacy, but rather due to funding and regulations.
DID IT WORK????
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paula "Time is not neutral for those who have pd or for those who will get it." |
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03-19-2012, 07:08 PM | #2 | ||
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In Remembrance
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i hear there are just 34 of you participants. it is imperative that we know how this is being handled and that you are medically safe. otherwise the pipeline project and others haven't been heard and will have to be louder over this particular treatment.
Is a big company going to take over? with a few specifics we could help possibly. we fought hard for the gdnf participants and we want to guarantee your follow up. are there placebos who can't ever get it now? that bothers me more than anything after safety. this happens too often , if it's a good treatment the NIH needs to get involved. they have alll the money and it's time for them to use it for treatments. others please post on all places where you write about this search for GAD participatants. As far as I know they wanted to move on to phase III.
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paula "Time is not neutral for those who have pd or for those who will get it." |
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03-19-2012, 07:21 PM | #3 | ||
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In Remembrance
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shoot i lost the first one. i hear there are just 34 participants . have they been unblinded? will the placebos not get anything now? that makes me so angry - people get their heads drilled and nothing for it. this is inexcusable. i hope someone in the know will inform us about the details, even the researchers for neurologix. it's important that patients get involved here and it's time for the govt. to bail out these companies who have success and are ready for phase III. i'm starting to think there is no phaseIII in parkinson trials. is a hybrid car worth more than peoples lives - millions having surgery and suffering - who could use the funding in a more deserving way. we have lost the priority of human life and replaced it with money and world control. watch Damascus.
please update if u know anything. thank you
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paula "Time is not neutral for those who have pd or for those who will get it." Last edited by paula_w; 03-19-2012 at 07:23 PM. Reason: oh i didn't lose the first one....sorry but it's all relevant |
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03-29-2012, 04:59 PM | #4 | ||
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New Member
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Quote:
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"Thanks for this!" says: | Conductor71 (04-21-2012) |
03-31-2012, 01:14 PM | #5 | ||
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In Remembrance
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we've been tracking clinical trials for over a decade and it's refreshing to get a detailed reply about a cancellation. It also lets us know that the sham surgeries were treated, something that is so very important to patients. You seem to have left room for it coming back, altho i am not implying that this is fact.
with appreciation, paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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"Thanks for this!" says: | pykers (04-20-2012) |
05-02-2012, 03:10 AM | #6 | ||
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I was a Neurologix Phase 2 participant. I got the sham surgery in 2009 and I was scheduled to get the real procedure in Nov 2011. The procedure was cancelled that same month due to Neurologix financial issues. The researchers I was working with did not know of anyone willing to pick up where Neurologix left off when I talked with them in Jan 2012
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05-02-2012, 08:22 AM | #7 | ||
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In Remembrance
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and to add insult to injury, they don't give you an explanation. i will check around to see if there is any info to be found, but people like you are why we advocate against sham surgery.
wishing you the best.
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paula "Time is not neutral for those who have pd or for those who will get it." |
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