Parkinson's Disease Clinical Trials For posting and discussion of clinical trials related to Parkinson's Disease, and for the Parkinson Pipeline Project. All are welcome.


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Old 08-26-2014, 01:26 AM #2
Bob Dawson Bob Dawson is offline
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
15 yr Member
Bob Dawson Bob Dawson is offline
Senior Member
 
Join Date: Dec 2008
Posts: 1,135
15 yr Member
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Way back in 2006, this video selfie was posted on YouTube by Reverett123 (our late, great, Rick Everett):
http://youtu.be/qxDmP8c4QUI

Uploaded on Dec 2, 2006
Rick said:
"(Play at max volume) Most patients and a good many doctors think of PD as simply a case of dying brain cells creating a shortage of the chemical dopamine. The treatment is to replace the dopamine. If this view was true, then this video would not be possible. I am in a state described as "off" and experiencing "freezing". The medicines are not working and my feet stick to the floor. It is a miserable way to be, trust me. Nothing happens to increase dopamine, yet you see the magic of music.

The importance here is that precious research dollars go by the truckload to the simplistic view of this condition when they should be going to new avenues. Dancing is fun, but I would rather have the option to walk."

A few months later, I started a weblog, with Rick's video on the first page:
http://parkinsonsdance.blogspot.com/
It gives me solace to hear that People With Parkinson's are out there, somewhere, dancing.
SO it was not all for nothing. What we tried to do was not for nothing.
Bob Dawson is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Thelma (08-26-2014)
 

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