Just confirming that this forum is open to all, as is the pipeline email list. The pipeline project focuses on clinical trials - all aspects of it from basic reserach to FDA approval, which is rare. It is different from the neurotalk group, altho there are many ways in which they overlap. The neurotalk group has offered ways to draw support and communication - to talk with multi-disciplinary professions and collect useful data. After giving it a pretty good stab, I don't see enough participation for anything to materialize at this time - Rick has contructed a wonderful, comprehensive, modified wiki. This group probably needs a few non pwp leaders.

HOPE fades with advanced pd and aging. You either make something happen or wait for someone else to do it. Patient advocates are like flashes of light that burn brightly, then burn out - in fact, there's a case to be made that this happens off and on everyday.


paula