Originally Posted by paula_w

Tena,

I'm sorry to say that the only thing that helps my dystonia is sinemet and getting back 'on'. It is incapacitating but there are certain postions and stretching I do as soon as I can. Mostly you have to ride it out. I hate it.

One thing i do is lay across the bed and let my head hang loosely face down off the side of the bed so the neck muscles aren't working and blood goes to head. I either let my arms hang down too or put them down at my side with palms up, relieving wrist tension and shoulder tension.

It also helps to have the edge of the bed or a chair or something to let your toes grab onto at the other side of the bed to relieve toe cramping. I do a few yoga stretches and breathe deep when i can.

Dystonia - looking like Frankenstein - same thing for me.
Paula