| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
|
|
09-18-2006, 06:36 PM
|
#1 | ||
|
|||
|
In Remembrance
|
Tena,
I'm sorry to say that the only thing that helps my dystonia is sinemet and getting back 'on'. It is incapacitating but there are certain postions and stretching I do as soon as I can. Mostly you have to ride it out. I hate it. One thing i do is lay across the bed and let my head hang loosely face down off the side of the bed so the neck muscles aren't working and blood goes to head. I either let my arms hang down too or put them down at my side with palms up, relieving wrist tension and shoulder tension. It also helps to have the edge of the bed or a chair or something to let your toes grab onto at the other side of the bed to relieve toe cramping. I do a few yoga stretches and breathe deep when i can. Dystonia - looking like Frankenstein - same thing for me. Paula |
||
|
 Reply With Quote
|
|
09-18-2006, 10:39 PM
|
#2 | |||
|
||||
|
In Remembrance
|
Quote:
effects my neck -lower back and toes, I am very much stressed as this summer, my son who is almost 21, was assaulted by 3 gang members, who broke into my sisters home, we have a Criminal case against them, but they are still harassing us badly. ryan has been hurt to the amount of 6000 dollars in hospital bills and more! thank you paula
__________________
with much love, lou_lou . . by . , on Flickr pd documentary - part 2 and 3 . . Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these. |
|||
|
|
Reply With Quote
|
|
09-20-2006, 07:22 PM
|
#3 | |||
|
||||
|
Member
|
Old thread might help:
http://64.233.161.104/search?q=cache...&ct=clnk&cd=13 Interesting article about dystonia in this cached thread: http://64.233.161.104/search?q=cache...&ct=clnk&cd=11 PAGE 2 OF THAT THREAD: http://64.233.161.104/search?q=cache...s&ct=clnk&cd=9 Last edited by ZucchiniFlower; 09-20-2006 at 07:34 PM. |
|||
|
|
Reply With Quote
|
|
09-20-2006, 07:35 PM
|
#4 | ||
|
|||
|
Member
|
Mirapex has helped my dystonia.
maam |
||
|
|
Reply With Quote
|
|
09-20-2006, 09:04 PM
|
#5 | |||
|
||||
|
In Remembrance
|
...on a thread near this one. While dystonia is one aspect that we have barely tested, my own experiment with a left foot determined to convert itself into some sort origami creation was favorable. It reduced it by 90% while I waited for the morning dose to kick in. Try just a loose wrapping. It doesn't need to be tight.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
|||
|
|
Reply With Quote
|
|
09-24-2006, 05:54 PM
|
#6 | ||
|
|||
|
Junior Member
|
Tena,
Like Paula, I found being off and dystonia went together. I used to find the dystonia much worse the longer I was off and the only cure for it was sinemet (when it finally kicked in.) You have my sympathy as I clearly remember the pain as almost unbearable, however I no longer get it (if that's any comfort!) since DBS 2 1/2 yrs ago. Lee particular Quote:
|
||
|
|
Reply With Quote
|
| Reply |
|
|
Thank You dear Paula!
Hybrid Mode
