Parkinson's Disease Tulip

 
 
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Old 09-24-2009, 01:01 AM #1
Jim091866 Jim091866 is offline
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Join Date: Oct 2006
Location: Central Florida
Posts: 520
15 yr Member
Jim091866 Jim091866 is offline
Member
 
Join Date: Oct 2006
Location: Central Florida
Posts: 520
15 yr Member
Default Is there anyone who does NOT have off time?

Hey, i know that sounds stupid, then you wouldnt' be suffering from PD..right? I just meant have any of you found a consistent timing for taking your meds and you dont get an off? I have had DBS, STILL have to take 1 1/2 sinemet every 2 hrs.. Ive been trying to return to school to finish a BA. So far so good. Yesterday I had my meds at around 6 so I was thinking I'd be good till about 8 or so. I use my watch with a countdown alarm on it. Well, come 715 or so and I'm still not on from the 6 pm dose, I take 1/2 a pill. Come 8pm and still nothing. I ended up taking my usual dose at 8 AND another 1/2 tablet at 8:40, had to have security from the college roll me out to the parking lot in a desk chair (weeee! that was the best part) and arrrived home dyskinetic as hell. The day was low stress, I ate lunch at 1:30 nothing special. Dont know what gives but I do know that I am going to find a way to get my powerchair into my truck for next week! At least I can get around.
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