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10-08-2009, 07:21 AM
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Member
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Next month I (along with a couple of other families in my hometown of Wilmington DE) will be hosting a Team Fox fundraiser---Pancakes for Parkinson's www.teamfox.org/teamfox/delawarepancakes
We want to have a PD resources table set up for folks who are looking for more information. I have MJFF materials of course and PDtrials.org cards, working on getting some WPC cards. Will have a couple of computers set up so happy to have one set to neurotalk--so folks can learn about this community...one will likely be set up for 23andme/pdcommunity. What are we missing? Just looking for ideas connecting folks to useful resources (national and local) at our local fundraiser. |
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| "Thanks for this!" says: | bandido1 (10-09-2009) |
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10-08-2009, 08:24 AM
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Senior Member
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Debi,
Sheryl & I would love to send you some pdplan4life brochures to have available. Our website has tips for living well, plus humorous stories about living with Parkinson's. Please PM me if you would like us to send you some materials. (our brochures are available in various neurology offices in Arizona & Illinois - including the Muhammad Ali Center) Thanks, Jean B Quote:
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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10-08-2009, 10:37 AM
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Senior Member
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How about something on PAN?
Both PDF and NPF are good online resources and produce quality materials - PDF has the creativity project and the online resource guide. Had one more in mind, but it slipped away ....... will post if it comes back!
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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10-08-2009, 06:26 PM
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Member
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I forgot to mention that I will have a standard one-pager handout for patient events that highlights online resources from other groups too ... (and includes pdplan4life for instance). Thanks for your ideas.
Debi |
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| "Thanks for this!" says: | jeanb (10-08-2009) |
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10-09-2009, 12:31 PM
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Member
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Quote:
The DVD was created for the newly diagnosed parkinson's patient and includes testimonials from patients as well as other resources available. Good luck with pancake idea. Bob C
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Be not by whom the first is tried nor the last to lay the old aside. . |
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| "Thanks for this!" says: | Debi Brooks (10-12-2009) |
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advice on "resources"?
pdplan4life brochures
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