Hi Ron,

Although I can be dyskinetic just sitting still if my med is too high, other times I am without dyskinesia, especially if I am just sitting at the computer or watching TV.

I can't talk about the physiology of what happens with dyskinesia, but I do notice symptomatically that the movements seem to be brought on by the activation of other muscles.

In other words, if I try to write, my mouth will go into a rigid grimace, kind of like when we were kids when we colored with crayons we would stick our tongues out without realizing it. Just talking makes me dyskinetic. When I do one thing, another part of me is going to move involuntarily. So when I talk, my other facial muscles are going to start reacting, thus making the facial expressions exaggerated. This is one reason I think people with parkinson's get accused of being drunk.

But plain old dyskinesia, when my med is too high in dosage, is less explainable for me....I just move involuntarily.

So Ron, I guess the point I'm trying to make is that perhaps your dyskinesia is related to your chewing. When engaging those muscles, it causes the reaction of other muscles. Do you eat alone or with your wife and others? Talking to people makes me dyskinetic as described above.
So that's two things that make me dyskinetic required at the same time - eating and talking, along with the fine motor requirements to cut, spread, etc.

Fiinally, having to sit still and make conversation is not always my favorite thing to do. I get squirmy, have you ever tried eating standing up or walking around to see if that reduces the dyskinesia?

paula

Hi Paula,
Margaret & I always eat together, asnd we do talk!! I do think you are right that it is movement of the muscles in the mouth talking or eating, (or both!).
Yes, I. have tried walking around when it starts,. and it does seem to be an easy way to control it. It does stop when you are on the move.
Hi EnglishMalc,
You may be new at this, but you are posting some well thought out ideas, and that is what we need.
Thanks to you others for your messages, much appreciated
Ron