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11-20-2009, 04:49 PM | #51 | ||
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Senior Member
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Cheating already, but I will forget to show this; you may have seen before, but it is new to me. Actual advertising of PD drugs before Mirapex and all:
http://www.bonkersinstitute.org/medshow/eps.html |
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11-22-2009, 11:55 AM | #52 | ||
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Senior Member
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Anuket, your contribution to this struggle for many years is greatly appreciate. And I love the way you can shred a scientific study - you see things that I never saw at all. Hold your head high. And I know you are on your way to great things. About PD. You are a leader and you are going to lead.
And more good news - got e-mail from Dr. Bin Hu and he is travelling through China setting up PD clinics. He says we will eradicate this disease from the face of the earth, forever. Anuket, I am listening to my tape of you singing HALLELUYA |
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12-05-2009, 05:24 PM | #53 | ||
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Senior Member
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Forgive me my trespasses.
Excerpt from Chapter 24: And you, at the Mayo Clinic, we are aware that you were pioneers in patient- centered medical care. We know that if you had been in charge of the Amgen GDNF experiments, the volunteers would not have been treated with such callousness and condescension . But what have you done for us lately? Scared away all our dates by telling the world that we are dangerous sex maniacs, thieves and gamblers. You have to make it up to us. Here is what we want from the Mayo Clinic. This is our only demand: win the Nobel Prize in Medicine for eradicating this evil disease from the face of the earth forever. Or at least try. From: http://parkinsonsdance.blogspot.com/...hapter-24.html Also, the soundtrack for chapters 21 to 24. The soundtrack for 1 to 20 is expained in 16. http://parkinsonsdance.blogspot.com/...hapter-99.html |
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12-05-2009, 06:10 PM | #54 | |||
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Senior Member
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Mayo tells the truth about PD and the side effects of agonists. We will learn nothing nor be able to move forward without facing and embracing the truth about living with and medicating Parkinson's.
__________________
Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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12-05-2009, 07:17 PM | #55 | ||
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Senior Member
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My wife and care-giver, says that it is not true that 20% + of us become addicted to gambling or sex. She says it is true that 99% of us are affected in myriad ways. Does good, does harm. Dreadful that after 60 years of research, same drug, and new drugs to go with it, but no treatment except same drugs.
Mayo research was third rate, a casual off-side comment. Maybe no budget. But they looked at a tiny sliver of a huge tree, and did not see the tree. They issued a moral condemnation more than a scientific fact. Way out here in the woods, it is taken as they said: 20% of us will rob, gamble and rape. Lepers. If true, then 20-% need immediate help. So where are these 20% and what is being done to rescue them? Either it is a sort of pandemic or it is not. 20% would be a few hundred thousand people needing emergency intervention. Nothing is happening/. |
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12-05-2009, 08:40 PM | #56 | |||
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Member
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I see we're having math problems again. hehe!
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12-05-2009, 09:00 PM | #57 | ||
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Senior Member
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Yeah, some day I gotta learn to either swim or stay out of the deep end of the pool.
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12-06-2009, 10:31 PM | #58 | ||
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Senior Member
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To make it clear, after much discussion in our group of mostly rural and small town Parkies:
-Whatever is true is true, and must be said; -Some people have had their lives ruined by these drugs. -Some of us maintain that the drugs are a godsend. -Everyone should be warned that any brain-altering chemical can do strange things to us; it is shocking that pills have been handed out like candies. -Out here in the boondocks, some fine citizens now view us as lepers: 20% or more of us have been scientifically proven to be destructive, stealing to gamble, and committed sexual offences that are never named, always left to the imagination, but described as indecent and humiliating to their families; speculation runs the full range of sex crimes. So we are not to be trusted, employed, or even permitted to remain in the community. Look, it gets rough out here. So if it is not true that 20% of those who take agonists become destructively out of control and addicted to gambling and illicit sex, portrayed as sex crimes, then it is irresponsable to claim that it has been proven as fact. We believe there is a percentage, but 20% is way high and not at all proved by the Mayo study. -And if it is true that 20% of us are, right now, today, engaged in destructive behaviour and uncontrolled addictions to gambling and unacceptable sex, then there must be an immediate emergency program to help those people. But of course there is not. To summarize: if 20% is true, send help fast. If it is not true, retract the accusations. Instead, we are told that it is true and if we disagree, we are silenced or ignored; Anuket's critique of the evidence was first deleted, then when re-posted, it was ignored. No response at all. Silence, and consent, from the Parkinson's industry; growing hostility from the "general population." I am talking about Parkies losing their jobs. I am talking about people effectively being ostracized, driven away. I am talking about people you have known for years suddenly not wanting you to get near their wives or daughters, or the school yard. Would you accept that 20% of any group in your small town commit out-of-control crimes at random? Compulsive, uncontrolled sex crimes? Theft and embezzlement to pay gambling debts? Folks in these parts don't want that kind of psycho scum living in the neighborhood. Thanks a lot, scientists. -So we are back where we started. 20%+. True or not true? If true, where are the first responders? If not true, why published around the world? But we don't expect a good answer. We don't expect any answer at all. Like the Monkeys in the Middle, we are experimented on, but not part of the experiment except as specimens. |
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"Thanks for this!" says: | bandido1 (12-07-2009) |
12-06-2009, 10:59 PM | #59 | |||
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Member
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I really think you need to chill. The majority of the population is not well versed on PD let alone any drug effects from our meds.
The information needs to be out there, good or bad. Knowledge is power. |
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12-06-2009, 11:05 PM | #60 | ||
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In Remembrance
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so Dr. Stacy got the large sum of money i assume?
paula Quote:
__________________
paula "Time is not neutral for those who have pd or for those who will get it." |
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