Parkinson's Disease Tulip


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Old 12-31-2009, 07:04 AM #1
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Default Poll: Are you EXTREEMLY Cold or hot compared to other people?

My patient wanted me to start this thread. She burns up all year round. I, on the other hand, wear two pair of long-johns/ two or three layers of tops, and a coat or heavy sweater in her house. Most people that come to visit find the house cold, but the cold weather has bothered me excessively this year. It seems like my core gets cold & I have trouble warming back up (bone cold!). Any of you have simular trouble & what do you do to either get cooled off or warmed up???? A HAPPY & HEALTHY NEW YEAR TO ALL
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Old 12-31-2009, 12:03 PM #2
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Default hot hot hot!

Aunt Bean -

I am always hot hot hot! The heat and the sweating that come with it are the physical manifestations of PD that I hate the most. Once I start sweating, I can't stop - it pours from my head, drenches my hair, and can take hours keeping still in a cool area to dry out and cool down. One neuro I talked to said we lose the ability to sweat from our hands and feet; through head and trunk only; this is true for me!

What do I do for this? Number one - live in the Pacific Northwest, land of mist, drizzle, showers, sprinkles, straight-out rain, and forever-gray skies enlivened by the occasional "sun break" for 9 months of the year. And despite the water-laden nature of our atmosphere, our summers (3 months; July-September) are sparkling, breezy, humidity free and rarely top 80 degrees.

I have learned to deal with it by 1) always traveling with a hand held electric fan, and also a hand-pumped one with a water bottle attached, 2) keeping a bandanna around my neck or in my pocket for quick absorption, 3) keeping my home as cool as possible, 4) keeping hydrated, 5) avoiding the South and Midwest (I am already anxious about a meeting I have to attend in North Carolina in late February).

In the winter, I rarely wear a coat - maybe a sweater - I was actually in need of one last week during an unusual run of several days below freezing - like a true Seattleite, I never carry an umbrella - just walk between the drops. In the summer it's sandals, shorts, skirts and t shirts. I stay out of the sun, unless I'm doing something refreshing like boating or swimming (it was so hot at the Unity Walk in NYC last spring that I ditched the walk and sat in the shade of the PDF booth with my water spray fan).

Not only is it uncomfortable, but my extreme sensitivity to heat interferes with my desire to exercise, because it occurs no matter how hydrated I am. And it increases with anxiety when I worry about "what will I do when I start sweating in this very important meeting?" etc etc etc. I hate it.

For any of you out there who happen to have an interest in astrology, my chart burns with fire (2 grand fire trines), so my woo-woo, metaphysical side sees an archetypal, universal, destiny loaded with possibilities to walk a fiery path; a spiritual challenge to master and overcome; my scientific, rational, academic side sees someone with Parkinson's disease and an unbalanced metabolic system that is a physical challenge to master and overcome.

I am always looking for tips to keep cool if anyone has them.

Oh, and did I mention the possibility of menopause?

Happy New Year Everyone (yikes! the days are getting longer; the light is good - but I dread the accompanying heat!)
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Old 12-31-2009, 03:16 PM #3
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Hi,
I am the opposite of Indigo, I am always cold, everyone else is warm and cosy and my hands and feet are cold. Except in the very height of British summer, when I cannot cool down for love or money...... I have to avoid going out in the cold because it takes hours to get reasonable warm again. I also do not feel myself getting cold, so it is only when my core is really cold that I realise I am in trouble. Heat is the same thing, I do not realise things are really hot till too late, so burned myself very badly leaning on a radiator. Something is topsy turvy with my regulatory senses! I think this has been discussed a few times on the boards over the years, and was put down to autonymous systems going out of whack.....

Happy new year to all
Lindy
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Old 12-31-2009, 09:22 PM #4
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Quote:
Originally Posted by lindylanka View Post
Hi,
I am the opposite of Indigo, I am always cold, everyone else is warm and cosy and my hands and feet are cold. Except in the very height of British summer, when I cannot cool down for love or money...... I have to avoid going out in the cold because it takes hours to get reasonable warm again. I also do not feel myself getting cold, so it is only when my core is really cold that I realise I am in trouble. Heat is the same thing, I do not realise things are really hot till too late, so burned myself very badly leaning on a radiator. Something is topsy turvy with my regulatory senses! I think this has been discussed a few times on the boards over the years, and was put down to autonymous systems going out of whack.....

Happy new year to all
Lindy

Sounds like me. Seems like I need a new thermostat...but cold bothers me much more than heat this year. We are having an especially cold winter so far...unusual for east Tennessee. A friend suggested insulated clothe Aunt Beans from a company called Patagonia..may have to get some!
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Old 01-01-2010, 11:18 PM #5
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I'm often cold. I'm now in my low thermostat house, wearing long underwear, a turtleneck, fleece sweater and down vest. I find that when I'm cold, my body tenses and all movement is more difficult. I can't do tai chi when I'm cold -- nothing flows. For me, it's very important to keep my back and neck warm. I often sleep with my neck wrapped in a muffler.

I spent two hours last week in my car on a very cold day waiting for AAA to jump start the car and was pleasantly surprised that I warmed up quickly when I got inside. I think my down coat saved me.

Now that's probably more info than you wanted but it's my experience.

Happy New Year -- it feels like many connections are flowing.

Katherine
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Old 01-02-2010, 07:05 AM #6
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I guess what I need is a down vest! I bought a new jacket after Christmas when reduced to 60% off, but it is still not warm enough. Same here, when my neck/shoulders especially are cold ...like now, my tremor starts in my neck and goes down my arms. I usually have 2 pair of long johns on plus layers of top clothes...BURRRRRR time to get dressed for the day. Stay warm ya'lll
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