Parkinson's Disease Tulip


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Old 01-03-2010, 02:06 AM #1
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Default Could i have another neurological disorder?

Anybody still up? Or any of you early risers in other parts of the world?

I have been followed by an ophthalmologists for at least 5 years for a larger than normal blind spot in my left eye (but not big enough to cause great concern). It hasn't "grown" since he has been following me. But now he seems t o think that I have something called Adie's pupil (and no Adie isn't a teacher).

Here's the scoop on it.

Adie's Pupil
Adie's pupil is a neurological condition of unknown origin with an unusual, asymmetric presentation known as anisocoria, an inequality in the size of the pupils of the eyes. It is believed to be a result of damage to the nerve innervating a muscle of the eye known as the ciliary body. Alternately, the problem may be located at the ciliary ganglion, a kind of nerve junction structure from which the nerve to the ciliary body runs. Accommodation, or the adjustment of the eye for distance, is affected, as well as pupillary dilation and contraction, the ability of the eye's iris to open or close in response to ambient light. Adie's pupil primarily affects women from 20 to 40 years of age. It is considered to be a benign condition with no known cure. When Deep Tendon Reflexes (DTRs) of the legs—knee and ankle jerks—are also affected, accompanied by symptoms including localized, discreet areas of the skin that do not sweat, postural hypotension (low blood pressure related to sudden standing or rising), and unsteady heart rhythms, the condition is referred to as Adie's syndrome.) SOURCE: HEALTHMED ONLINE

My vision has only changed in tiny increments over the years. I'm 20/200 and have glasses with less than 2 diopters OU and my reading up close is 20/30 without bifocals and 20/10 with correction. The enlargedl blind spot is OS, which is the same side as the transplant (cells for (Am I impressing you with my terminology? I used to work for a group of ophthalmologists).

Has anyone else experienced anything like this? I look kind of weird with pupils of two different sizes, and it comes and goes. I don't recall my irregular pupil discovery until about 5 years ago, but it might have been there earlier but wasn't noticable. I have a friend who claims EVERYTHING is a result of having PD - and in a roundabout way this might be true in my case.

But after reading the symptoms of this disorder, is it possible that some of my symptoms could be contributed too having ANOTHER neurological disease? Or even worse, maybe I don't even have Parkinson's (shudder) I doubt seriously the last claim, because I am majorly responsive to dopaminergic therapy (aka Sinemet). It is also possible that during the experimental surgery, the surgeon may have damaged my eye somehow - but there's no way to prove any of that.

So why did I write this? Because it brings to light what I consider to be another flaw in PD research. Are the deep tendon reflexes causing knee jerks (what I have been claiming are dyskinesias or dystonia) due to PD or Adie's pupil? In comparing other symptoms, Ido not have orthostatic hypotension but do have a minor heart murmur.

Another point to consider is t h is - as we age, so many symptoms mimic PD - like rigidiity, balance difficulty, memory loss, etc. Another reason why we need to look at our assessment tools in research and revamp them.

REALLY going to bed now zzzzzzzzzzzzzzzz
Peg
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Old 01-03-2010, 07:05 AM #2
TrishaPDX TrishaPDX is offline
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Very interesting, as we've noticed this in Jan. She sometimes has trouble focusing, especially in the evenings. Thus far she's not been given an explanation.
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Old 01-03-2010, 09:05 AM #3
lindylanka lindylanka is offline
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Peg,
I do not know anything about Adies pupil, though it does sound to me as though it is a symptom, not a cause.

What I do know about PD and the eyes however, is that the eyes ARE or can be affected - and in odd ways. I have poor downward gaze, which is often associated with p-plus disorders, which I do not think that I have. I also have an evil and intermittent double vision, which responds to sinemet (!!) and is present in both eyes - even if one is covered. The ophthalmologist says this is impossible, and tries to find non-existent astigmatism in my eyes (I've worn glasses for 55 years, I guess that someone would have noticed astigmatism before if it was there...). Over the years I have read a number of posts from people with eye issues that confuse neuros and the eye docs, and leave the PwEyeIssues pretty fed up!

You did impress with the terminology!!

Adie's looks to me like it is the outward expression of brain malfunction or damage, from your definition. The way things are named are one of the obscuring things in medicine, PD is a prime example - I really like Conductor's quote from her post earlier on today, I am sure we have a mixed bag of damage, currently called PD, but which one day will be treated for the specific, and not the general.....

Lindy
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Old 01-03-2010, 01:54 PM #4
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Default Thanks, ladies!

PD has so many variables that it's a wonder any of us are diagnosed or treated to obtain the best quality of life.

You know, before I go out in "public," I usually labor 2 hours to "put on my face" , and sometimes need help with some articles of clothing (buttons, laces, etc.).

Then it's a major endeavor at times to brush my teeth (you know what I mean - instead of your hands doing the brushing,, it's your head going back and forth!) Sometimes you can "walk like an Egyptian," then the next minute you're struggling to get across the bedroom floor (and I even CRAWL when I'm really off to keep from falling).

There are times when you forget even your own name, and then there's the periods when you swallow and you are certain the neighbor across the street heard it.

(I'm building up for an explosion) - you remember you have to be somewhere and you are already late because you have to do all of the above. You may nod off a second or two if you drive yourself, or you gave up driving a long, long time ago. So you finally arrive totally dressed and the fruits of your labor makes you look presentable, and somebody walks up to you and says, "How good you look, and you must be feeling a lot better. So how are you?" After you growl . . . "GRRRRR" - you should say "Have you got a couple of hours, and I'll tell you how I'm doing!"

I know you just want to sit down and either cry or curse. And you can't tell me that a researcher, neurologists who treats 2-300+ "conditions, John Q. Public, or even a close member family that lives under the same roof, can empathize - can totally know what it's like living with Parkinson's.

So how are we (and I say "we" because we - a half dozen here and there can't do it alone. How can we explain what we go through day to day, hour by hour? How can it graphically be represented? Well, there's a few of us (less than a dozen) who are trying withh the NeuroTalk book. We'll come here from time to time to request information - sometimes very intimate, personal information - but OUR STORY MUST BE TOLD!

There - I just had to get that out. I feel a little better just venting. But we honestly are no closer to a cure than we were 10 years ago (in my opinion). Is there anybody out there that can prove me wrong?
(sigh)
Peggy

Last edited by pegleg; 01-03-2010 at 01:57 PM. Reason: I had to edit my stupid typos with double and triple leltters!
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Old 01-03-2010, 02:09 PM #5
lindylanka lindylanka is offline
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Oh Peggy, you had me laughing so much!!

Yes it is so much the right time to say it as it is!!

Let's do it.......

Lindy
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