Parkinson's Disease Tulip


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Old 01-08-2010, 07:50 AM #21
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Shocked Ok i did it

I got a "7"

I counted the "shaking" only when I knew my tremor was exacerbated by driving or whatever but not my "resting tremor."
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Old 01-08-2010, 08:25 AM #22
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Default Jean

Does that laid back bike you ride have anything to do with your laid back approach to life? lol

Peg
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Old 01-08-2010, 09:00 AM #23
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Default Speedy Gonzales

Hi Peg,
You asked what 45 to 50 MPH is in Km. It is 72 to 80 KMH.
However, You must not have been too anxious, since your estimate of speed is low, I think it is nearer 55 to 60 MPH!!!! In 22 years I have only been scraped down the side by a juggernaut and been hit by a white van, who admitted resposibility since he confessed he was "admiring the scenery"
You have to remember our rural roads were made for two men on horseback to pass each other, and we have never widened them!! We drive on the left side since we are mainly right handed. If you are on horseback and you meet a stranger riding towards you, you move to the left so you can quickly draw your sword with your right hand!!
The British Empire used to cover one third of the globe, so most of them drive on the left also. To show you we are not alone, here is a list of
left hand driving countries.
1. Anguilla
2. Antigua and Barbuda
3. Australia
4. Bahamas
5. Bangladesh
6. Barbados
7. Bermuda
8. Bhutan
9. Botswana
10. Brunei
11. Cayman Islands
12. Christmas Island (Australia)
13. Cook Islands
14. Cyprus
15. Dominica
16. East Timor
17. Falkland Islands
18. Fiji
19. Grenada
20. Guernsey (Channel Islands)
21. Guyana
22. Hong Kong
23. India
24. Indonesia
25. Ireland
26. Isle of Man
27. Jamaica
28. Japan
29. Jersey (Channel Islands)
30. Kenya
31. Kiribati
32. Cocos (Keeling) Islands (Australia)
33. Lesotho
34. Macau
35. Malawi
36. Malaysia
37. Maldives
38. Malta
39. Mauritius
40. Montserrat
41. Mozambique
42. Namibia
43. Nauru
44. Nepal
45. New Zealand
46. Niue
47. Norfolk Island (Australia)
48. Pakistan
49. Papua New Guinea
50. Pitcairn Islands (Britain)
51. Saint Helena
52. Saint Kitts and Nevis
53. Saint Lucia
54. Saint Vincent and the Grenadines
55. Samoa
56. Seychelles
57. Singapore
58. Solomon Islands
59. South Africa
60. Sri Lanka
61. Suriname
62. Swaziland
63. Tanzania
64. Thailand
65. Tokelau (New Zealand)
66. Tonga
67. Trinidad and Tobago
68. Turks and Caicos Islands
69. Tuvalu
70. Uganda
71. United Kingdom (England, Wales, Scotland and Northern Ireland)
72. Virgin Islands (British)
73. Virgin Islands (US)
74. Zambia
75. Zimbabwe

Ron
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Old 01-08-2010, 10:55 AM #24
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An 11 for me.
And I, too, have spent some time on the "Ron's Ride of Your Life" but after a day or two I came to realize that what I had taken for English Madness was anything but. They have evolved a very effective way to adapt narrow roads to modern traffic. It works like this- there is a pull over everywhere the line of sight changes. So anytime a car comes into view there is a pullover somewhere between them. Both drivers floor it and race to the pullover. Whoever gets there first yields the right of way! It works!

Now back on topic- I notice that when I first start going off and freezing, there is a period when I can will myself to relax and I can walk. It may last only minutes, but the fact that it exists at all should tell us something.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 01-08-2010, 11:27 AM #25
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Wink LOL - sleeping on the trike

Quote:
Originally Posted by pegleg View Post
Does that laid back bike you ride have anything to do with your laid back approach to life? lol

Peg
Peg, LOL --

People from cars shout at me to "Not fall asleep" while I"m riding on the trike in the neighborhood... And while I don't think I'm particularly "laid back" but I also don't think I'm particularly anxious.
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Old 01-08-2010, 11:31 AM #26
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Default Yikes Ron

Quote:
Originally Posted by reverett123 View Post
An 11 for me.
And I, too, have spent some time on the "Ron's Ride of Your Life" but after a day or two I came to realize that what I had taken for English Madness was anything but. They have evolved a very effective way to adapt narrow roads to modern traffic. It works like this- there is a pull over everywhere the line of sight changes. So anytime a car comes into view there is a pullover somewhere between them. Both drivers floor it and race to the pullover. Whoever gets there first yields the right of way! It works!.
I haven't driven in the UK - and have no plans to ever do so. But I HAVE driven in France where some of their main roads (ok this was in the 1970's) had 3 lanes: the center lane for passing where the drivers would play "chicken" to see who would move out of the way first! Needless to say, I didn't pass very much in France...
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Old 01-09-2010, 12:01 AM #27
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Maybe I need an occasional ride with Ron to wake me up. I scored a 1!
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Old 01-09-2010, 04:15 AM #28
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I still don't have an official diagnosis of PD, but I thought it would be interesting to see what this test said about my anxiety. I scored a 26, which is considered moderate anxiety. I have been taking Effexor ER for about five months and that has really helped. When I start to feel worked up about things I try to focus on my breathing. I also ask myself if whatever has me upset is going to matter five years down the road. If the answer is no, then I tend not to worry about it.

I decided that I am going to go back to the original Neurologist that treated me. I have an appointment on February 8th. I will update after that appointment.
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Old 01-09-2010, 07:50 AM #29
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Default Mixed topics

First, Ron, let me address your comment. Of all those places you listed, iI have only been to the Cayman ISlands and Jamica (and iti was a port stop on cruises, so no driving). I did, however, take a spin on the Audubon in Germany - when we reached 125 mph (which I think converts to 201.168 kilometers/hour) AND with a 38 result on this anxiety quiz,, I soiled a new pair of pants. lol

Rick, you said, "I notice that when I first start going off and freezing, there is a period when I can will myself to relax and I can walk. It may last only minutes, but the fact that it exists at all should tell us something."

Yes, I can sometimes focus and concentrate rreally hard and come out my freezing. This is why I believe biofeedback would be very helpful in managing PD. I used to hyperventiallte (probably was my undiagnosed anxiety), and using biofeedback techniques, it was resolvled quite simply. But I cannot for the life of me will away the rigidity or bradykinesia (slow movement).

Evonne - your decision to go back to your neurologist shows that threads like this are wonderfully successful when it helps a PWP (or whatever you have) to make . They are working hard to fine-tune the Spect scan so that we can positively diagnose PD. Biomarkers is an area where research needs to be putting their focus.

Robert - good to see you posting again. You muts be like me - in for a while then missing in action. And I don't know what your career was/is, but it should be something in psychology! A "1?" That's unreal!
thanks to everyone responding. There's another quiz I found to determine whether or not you could benefit from psychotherapy (see this thread: Chemical Balancing Act or Mental Management"
http://neurotalk.psychcentral.com/thread111914.html
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Old 01-09-2010, 10:26 PM #30
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Default Anxious

[QUOTE=pegleg;608620]

"Generalizied mild anxiety" is what the shrink has labeled it. My score of 6 is surprisingly low. Some things seem to release the anxiety more than others. For instance, watching a thrilling sport event, or anticipation of taking an examination seem to set me off. A public speaking engagment is the worst, usually resulting with bleeding fingernails, and a personal promise never to consent to another speech again. On the other hand, I seem to function very well when faced with significant stress, like the loss of a loved one, being fired from a job, or caring for family members who had been injured. Expectations and brain chemistry play an important role with my anxiety. I have learned to mask anxiety symptoms very well. Apparently, I fooled the quiz as well.

Gary
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