Parkinson's Disease Tulip


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Old 06-10-2013, 04:52 PM #6
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I_Got_it_2 I_Got_it_2 is offline
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Default Stopping Sinemet

Quote:
Originally Posted by pegleg View Post
I have always contended that these /compulsive/impulsive behaviors are a part of the advancing disease, but CAN be fueled by some agonists. Nothing has been proven on their association. I was in a 7-day study at NIH on this very thing and the report said the control group was no different.


you can literally die from abruptly stopping of PD meds:
(quoting from the link above)
If this syndrome occurs in the setting of Parkinson's disease the treatment is basically the same except the parkinsonian medication should be re-instituted as quickly as possible. Because of the risk of this syndrome drug holidays are no longer routinely recommended for Parkinson's disease.

I say take your meds until they prove it's hurting you!
Peg
Hi Peg,

I just wanted to weigh in with a recent experience. In fact, it is happening as I type this. I recently had a back problem which required me to take Flexeril and Ibuprofen. I was taking Prozac, Cogentin and Sinemet already when I noticed a change.

On the 3rd of this month, June, as I was taking the above meds--to shorten the story I will jump to the end. For almost a week now I have had an immediate positive reaction since I discontinued the Sinemet, cold turkey, 100%. I continued with the other meds and am tapering off the Flexeril and Ibuprofen.

So, for these last six days I have had little Parkinson symptoms and I feel great! I have went from 50% normal to over 90% normal. No more do I need to rush to shave because I'm "on". No more 45 minute showers because I can't move fast enough to cover all the bases. I can pull my pants up, shave, walk, talk, tap my foot to the beat of the music, button my shirt, turn over in bed...you get the picture. A week ago I went from "on" time and "off" time while Parkinsons dictated to me my schedule. And if I ate a meal, all bets were off as I unpredictably crashed. Today, for the last six days I eat when I want, bathe when I want, etc.

Just a short lived experience which has been a tremendous give to me from God. And if I change back tomorrow and once again answer to the Parkinsons, so be it! The last week has been so liberating I can hardly believe it.

Anyway that's my 2 cents worth.

Jim
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