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jerky movements, who has these?

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Old 01-16-2010, 03:14 PM   #1
lurkingforacure
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Default jerky movements, who has these?

This is not dyskenesia, it is more of the spastic, jerky movements I associate with MS. At first it was just at night, and I know that many many folks have jerks and twitches as they are about to fall asleep, so no big deal.

As we have progressed, though, they are coming during a full-awake phase, not even preparing to sleep. Think of an arm being flailed out, completely suddenly and randomly, just once, or a leg. It is so weird, and I have never heard anything about this with PD. Like I said, I have always thought these random, jerky flailings were more characteristic of MS, but we have PD....or, I should say, we have been told we have PD.

Anyone else have these, and if so, what do you do for them? We can't seem to find any rhyme or reason to when they occur. Thanks.
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Old 01-16-2010, 07:03 PM   #2
girija
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lurkingfor cure,

I get spastic, jerky, random movements of my limbs for no reason (exactly as you describe) most often legs than arms though. There is no pattern or correlation to anything I do and these are g]osudden movements. So far havent done anything about them, Haven't even talked to my neurologists yet.
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Originally Posted by lurkingforacure View Post
This is not dyskenesia, it is more of the spastic, jerky movementsThink of an arm being flailed out, completely suddenly and randomly, just once, or a leg. It is so weird, and I have never heard anything about this with PD. Like I said, I have always thought these random, jerky flailings were more characteristic of MS, but we have PD....or, I should say, we have been told we have PD.

Anyone else have these, and if so, what do you do for them? We can't seem to find any rhyme or reason to when they occur. Thanks.
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Old 01-16-2010, 10:56 PM   #3
reverett123
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Default From wikipedia

Myoclonus (pronounced /maɪˈɒklənəs/) is brief, involuntary twitching of a muscle or a group of muscles. It describes a medical sign and, generally, is not a diagnosis of a disease. The myoclonic twitches are usually caused by sudden muscle contractions; they also can result from brief lapses of contraction. Contractions are called positive myoclonus; relaxations are called negative myoclonus. The most common time for people to encounter them is while falling asleep (hypnic jerk), but myoclonic jerks are also a sign of a number of neurological disorders. Hiccups are also a kind of myoclonic jerk specifically affecting the diaphragm. Also when a spasm is caused by another person it is known as a "provoked spasm". Shuddering attacks with babies also fall in this category.

Myoclonic jerks may occur alone or in sequence, in a pattern or without pattern. They may occur infrequently or many times each minute. Most often, myoclonus is one of several signs in a wide variety of nervous system disorders such as multiple sclerosis, Parkinson's disease, Alzheimer's disease, Subacute sclerosing panencephalitis and Creutzfeldt-Jakob disease (CJD) and some forms of epilepsy. Some researchers indicate that jerks persistently may even cause early tremors.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 01-16-2010, 10:59 PM   #4
paula_w
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lc,

are you familiar with myoclonic jerks? I don't know if it happens often enough to even consider this, but here's the link:
http://www.ninds.nih.gov/disorders/m..._myoclonus.htm

I'm pretty sure this can be temporary and med related.

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Old 01-16-2010, 11:01 PM   #5
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head on collision of identical thought.


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Old 01-17-2010, 05:10 PM   #6
reverett123
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good thing i had my intellectual seat belt fastened
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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