Parkinson's Disease Tulip


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Old 01-31-2010, 10:21 PM #1
coachmomlu coachmomlu is offline
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Default Hello, I'm new and have a couple of questions

Hello all! I do not have a dx yet, will meet with a neuro on 2/9. It seems as though everyone's PD experience is different. I'm wondering if anyone has experienced these issues?

I have read that dystionia is a common problem in PD. Today I wore different boots for about 4 hours, in the early part of the day. But the past hour my feet have been cramping badly, turning downwards. I get some relief when I walk around. does this sort of thing sound like a PDism?

the other question is about blepharospasm. Is this something that sometimes occurs in conjuction with PD? Not sure that's what it is, but my left eyelid presses down when I talk or concentrate on listening. It looks like I'm squinting through my left eye. Its very uncomfortable. I can somewhat avoid it if I take on a less focused view, kind of staring like. Sounds crazy, huh?

Well, thanks for listening. I appreciate any feedback you may have.
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Old 02-01-2010, 08:51 AM #2
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Default replying to your questions

these, indeed, are symptoms of PD. HOWEVER, IN my experience they typically occur later on in the disease. SO, if i were a movement disorder specialist, which I am NOT, I would want to observe you and see if any other symptoms presented themselves.
Thats my .02 cents worth!

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Old 02-01-2010, 09:02 AM #3
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Default

Chasmo is right. I would expect that sort of thing much later. But that doesn't mean that it can't be. I would, however, expect any diagnosis to be based on a lot more than that.

As for "sounding crazy," don't worry about that. If you have PD then you have one of the "craziest" disorders around. That's why 200 years of looking hasn't solved it yet.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 02-01-2010, 10:09 AM #4
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Default funny

Quote:
Originally Posted by reverett123 View Post
Chasmo is right. I would expect that sort of thing much later. But that doesn't mean that it can't be. I would, however, expect any diagnosis to be based on a lot more than that.

As for "sounding crazy," don't worry about that. If you have PD then you have one of the "craziest" disorders around. That's why 200 years of looking hasn't solved it yet.
Rick, I do love your sarcasm! Made me laugh. Out loud.
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Old 02-01-2010, 03:59 PM #5
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haha! yeah, I get that from what I've been reading, it's pretty crazy. No worries, I'm scheduled to see a neuro on 2/9. those are just a couple of things I hadn't read about and wondered if they could be related, I've gots lots more! We'll know something soon, I suppose. until then, it's nice to know there's a place I can ask questions. Thanks!
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