FAQ/Help |
Calendar |
Search |
Today's Posts |
07-07-2014, 07:43 PM | #281 | ||
|
|||
Magnate
|
Quote:
|
||
Reply With Quote |
07-14-2014, 07:07 PM | #282 | ||
|
|||
Member
|
Soccertese, I HAVE practiced avoiding the tornados and storms. Don't park your van under a doubtful tree when there is a tornado warning. Once the whole PFP group moved from tents to a funeral home because of a tornado warning. One year we rode 4.5 hours in a torrential rainstorm, couldn't see with the glasses on and without them the rain hurt my eyes. But we from Seattle know rain. It was the heat in 2012 that nearly did me in. Thunderstorms are predicted for this trip. We'll see. Thanks for your "encouraging" words!
|
||
Reply With Quote |
"Thanks for this!" says: | soccertese (07-14-2014) |
07-14-2014, 10:22 PM | #283 | ||
|
|||
Magnate
|
Quote:
|
||
Reply With Quote |
07-15-2014, 07:12 PM | #284 | ||
|
|||
Member
|
I'll do my best!
|
||
Reply With Quote |
"Thanks for this!" says: | soccertese (07-15-2014), violet green (07-15-2014) |
07-21-2014, 03:36 PM | #285 | ||
|
|||
Member
|
Short report from Iowa. Toasty and windy yesterday and today. Yesterday I rode 62 miles and 45 today. 80 tomorrow. I was so concerned I wouldn't be able to do it but so far so good.
|
||
Reply With Quote |
"Thanks for this!" says: |
07-28-2014, 02:01 PM | #286 | ||
|
|||
Member
|
Notes from RAGBRAI. With much anxiety I started RAGBRAI on Sunday with Doug and the 65 riders of the Pedaling for Parkinson's group. I know the disease continues to progress and I wasn't sure I was up to the ride. But as soon as we drove into Hull, IA and I saw old friends and new, I felt confident that the ride would be good, not fast, but good. We have seven riders with Parkinson's on our team, riding everything from recumbent tricycles, to tandems to solo bikes. Four men and three women, all early onset but me, and representing many stages and iterations of the disease.
We've been staying a the homes of friends and relatives and at retirement/nursing homes. The latter give me a sense of what may come someday. We find the staff uniformly kind and generous, and certainly welcoming to our group. I think we give them discussion topics for months to come. Sunday and Monday were windy but not too hot. Jay gave talks each evening and asked each of us to share our stories, inspiring to us as well as to the guests. Tues was a long day but fun and confirmed I can still ride day after day. Wed. Jay spoke again, this time to a much larger crowd and then he and I were interviewed by a TV reporter. http://kimt.com/2014/07/23/pedaling-...with-her-bike/ The story played Wed. night and Thurs morning. Quite fun. Thurs our professional photographer, Lee, asked me to ride the last ten miles with him and a couple of the super riders so they could block out space and Lee could take action shots. I felt like a princess. Never had so much attention on a bike! We arrived in Waverly and didn't know how to get to the host house so we went to the fire station to ask and they ended up leading the way for us with a fire truck, more like a big pickup with fire gear. Much laughter and many photos. Today it poured and I got so cold I had early hypothermia so had to sag in. Hundreds of people packed the school cafeteria but the ladies took one look at me and hauled me into the kitchen and sat me down in front of the warming oven. Oh, the experiences I have with Parkinson's! Tomorrow is the last day. Glad we came. Addendum. Rode 82 miles on Sat, including flying downhill at 35 mph, not smart, but quite a thrill. I'm just now, 48 hours after the ride, feeling awake and normal. My symptoms are clearly reduced. RAGBRAI was hard, but worth every minute. Thanks for all your kind thoughts and positive energy. “Pedaling for Parkinson’s” kimt.com Through cycling, a woman gets her body back after being diagnosed with Parkinson's Disease. |
||
Reply With Quote |
"Thanks for this!" says: | Bogusia (07-28-2014), Lana (07-28-2014), shcg (11-05-2014), soccertese (07-28-2014), Stand Tall (07-29-2014) |
08-03-2014, 11:36 AM | #287 | ||
|
|||
Magnate
|
|
||
Reply With Quote |
08-28-2014, 10:31 AM | #288 | ||
|
|||
Member
|
The month flew by! Two events worth noting. The Glenn Erickson Pedaling for Parkinson's Ride netted over $12,000 to help start/sustain PFP programs in Western Washington, especially at YMCAs. 134 riders, including Soccertese, braved the hills of Redmond, WA and enjoyed the awesome bbq at the end of the ride. We have had requests from several Ys around the country to help start programs.
The other event was the MJFF/AbbVie Partners in Parkinson's day-long symposium in Tacoma. Nearly 500 people, about half with PD, attended, gaining practical advice as well as learning about current research in the field. My husband and I were part of the "doctor's visit" panel in which we had an intimate meeting with "our doctor" in front of the 500 family members in the audience. A novel experience, but one that I hope was helpful. We stressed cognitive issues more than movement issues as those seem to me to be ignored much of the time. Of course we emphasized pedaling as a key therapy and recommended the Peripatetic Pursuit of Parkinson Disease as a key resource. I have been able to ride about 20 miles 4-5 days each week, keeping me somewhat mentally alert and physically pretty strong. |
||
Reply With Quote |
"Thanks for this!" says: |
08-28-2014, 12:18 PM | #289 | ||
|
|||
Magnate
|
Quote:
|
||
Reply With Quote |
08-28-2014, 11:42 PM | #290 | ||
|
|||
Member
|
Thanks Soccertese. I'm sure it wasn't videotaped but they might have made an audiotape of it. Was it the format you liked or the content?
|
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Pedaling for Parkinson's | Parkinson's Disease | |||
Oprah talks about dystonia and Parkinson's disease | Parkinson's Disease | |||
Pedaling for Parkinson’s -- Full Length Doctor's Interview | Parkinson's Disease | |||
'Pedaling for Parkinson's' group hits RAGBRAI | Parkinson's Disease | |||
Dystonia - help? | Parkinson's Disease |