Hello All,

It was been quite some time since I have written so I figured I would follow-up with an update.

I suppose things have remained about the same since my last post, and perhaps have become slightly worse. My mother is presently taking CD/LD 25/100 8 pills per day and as I have mentioned in the past, they are not doing her much justice. I feel as if she has slowed down tremendously in terms of her ability to walk. She refuses to go anywhere in public and only leaves the house for doctor's appointments. She is taking Sanctura for her incontinence which seems to be helping. She is also taking Clonazepam at night which is supposed to help her sleep.

Last Thursday she complained of a severe stomach ache which she said was almost as painful as child labor. Then, the following day, she started with the diarrhea again. The diarrhea is not as bad as it was back in January when she was hospitalized for the dehydration, but it seems as if as long as she continues to take the CD/LD she is going to suffer from the diarrhea.

She has decided that she no longer wants to see the MDS in Philly that we have been seeing. She now wants to make an appointment at the Lehigh Valley Hospital Center, which is about 1 hour away from us. The drive to and from Philly is too hard on her anymore. We have called UPenn and requested that her records be transferred to Lehigh Valley Hospital Center and we are waiting for a return phone call indicating that the records have been transferred.

That is about all for now.

Matthew R. Smith

My sympathies for all of the difficulties you've gone through with your mom. I also as dx'd with PD shortly after a spinal surgery. I know a few more people through my mom that also were. It makes me wonder if this insult to our CFS space has something to do with certain symptoms or reasons for idiopathic PD. I turned out not to have PD but had micrographia in one hand after the surgery and very slight adrenaline based tremor (inderal treatable).

It certainly makes it seem there are many kinds of PD and many possible treatments. I did see one post and my Mom has a friend that is allergic to certain kinds of sinemet. I wonder if this could be part of your Mom's issue. See page 2 TonyaV's reply to my question about a friend of my Mom's being allergic to sinemet. Her reply included some brands etc that might help.