Parkinson's Disease Tulip


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Old 03-06-2010, 09:08 AM #11
coachmomlu coachmomlu is offline
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coachmomlu coachmomlu is offline
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Originally Posted by Conductor71 View Post
Cindy,

You are correct in the dystonia description. It is more like muscle spasms or cramping than deep joint or muscle ache. If you are only taking a total .025 Mirapex each day, then that is likely not it (I was on .025 three times daily).

You may want to ask your doctor regardless...this is from the www.drugs.com site:

In very rare cases, Mirapex can cause muscle wasting. If you develop muscle aches or soreness after you start Mirapex, be sure to tell your doctor.


Sorry, this may not at all be what is going on with you, but wanted you to be aware. The agonists in particular come along with nasty side effects and wearing off effects for some of us. Not at all sure how Mirapex works to control RLS...though it seems that the side effects are pretty consistent.

Hope you find something that helps!

Laura
Laura, I've got no idea what's going on with me. I'm not sure it's even Parkinson's, but it's something. I guess I just can't get in a hurry for a dx, and continue to learn as much as I can, listen to my body, and take care of myself. One thing for sure, it really helps to have a place where people listen, care, and understand all the idiosyncrasies of this journey!

Have a wonderful weekend!
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Old 03-06-2010, 09:14 AM #12
coachmomlu coachmomlu is offline
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Originally Posted by pegleg View Post
Ii believe our bodies build up immunities that fight (or lose) against these "toxins" we put into our bodies. Yes, I called an agonist a toxin. I am of the opinion that ANY kind of foreign chemical introduced into our system turns toxic after taking it for a while. It's a theroy that I have been meaning to give more time to research.

You know, peoplelpast 65-70 cannot tolerate dopamine agonists like the younger patient. They experience halllucinations and weird paranoia, etc. There's got to be some connection in that somewhere that could help us with better treatments.

I dont' mean to get on my soapbox, but I'm ready for some new and novel treatments for PD.
Peggy, I believe you are right, these meds are toxic. If there are more holistic ways of treating something I'm all for it! I try to be very careful about food sensitivities, as I find they can exacerbate anything! The daily yoga really helps with the stiffness, if for only that day.

So far I've had no adverse reactions to the Mirapex. It's nice to still be considered "younger"!
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