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03-18-2010, 09:44 PM | #1 | |||
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In Remembrance
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A very odd afternoon. You know how sometimes the meds just "hang" and you just can't quite get across that threshold? And the harder you try the worse it gets?
Well, I was like that for five hours this afternoon. Lying around in a miserable lump. Finally, in desperation, I very carefully made my way into the shower and turned it on without warm up/ Oooo-Eeeee! I was hollerin' and cussin'! Every muscle in my body went from weak fibrillation to hardened cramp instantly. I stood it for three or four minutes. Got out and went across the hall and laid on the bed. I could already tell that I was doing better. In about ten minutes I was finally back on!
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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03-18-2010, 10:02 PM | #2 | |||
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In Remembrance
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with much love, lou_lou . . by . , on Flickr pd documentary - part 2 and 3 . . Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these. |
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03-19-2010, 06:57 AM | #3 | |||
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In Remembrance
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Hi Rick,
I have mentioned previously that I occasionally switch on when I have had no meds, such as when I get up, or in the evening when my meds have long worn off. It happens 3 or 4 times a month, and I don't need the cold shower!!!. However it only lasts up to an hour maximum, sometimes only 10 minutes. You say it took about 10 minutes to switch on after you got out the shower, but how long did it last? Have you ever had my type of "on" when you are unmedicated, and without the shower. Just one thought, Ice cold water on the head has an effect on the permeability of the BBB. I can find reports which say the BBB decreases in permeability, and others which say it increases. If it decreases it, you would probabl;y switch on, and off again when it warms up and you have your defective BBB back? Best wishes Ron
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Diagnosed Nov 1991. Born 1936 |
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03-19-2010, 11:48 AM | #4 | |||
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I've been doing hot showers with a quick "all the way to the coldest temp" at the end for about 8 years.. actually, started that about the time PD symptoms resurfaced. .It really does make your muscles wake up and function ( the Finns do "hot sauna and then go jump in a cold lake"...don't think I could do that!)
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03-19-2010, 05:42 PM | #5 | |||
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In Remembrance
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Ron-
First, let me clarify that I wa well medicated but the meds were ineffective. Felt like a storm about to break but just would not, hour after hour. My muscles felt like a heart needing a defibrillator- weak, incoherent signals. But when that cold water hit, it was like a drill instructer yelled "ATTENTION!" and set off a cascade of some kind. Full on in ten minutes. Stayed that way for four hours and went to bed still on. Somewhere along the line I read that a cold water plunge triggered a release of noradrenaline. Maybe there is a clue there. In any case, I repeated the experience this morning with similar results. Tried it again this afternoon at the first signs of going off and got little effect. Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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03-20-2010, 12:06 PM | #6 | ||
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I take hot/very cold shower for 6 minuites twice daily which makes me feel alive and alert.
Youu may wish to check previous postins on this topic: http://neurotalk.psychcentral.com/sh...ight=imark3000 good luck with it ! we need it in our personal experimentation on our own risk Imad |
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