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04-02-2010, 01:35 PM | #1 | |||
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you guys knew i couldn't be gone long.. right? heehee. i am kinda curious about something. since my pd dxd, i have had other dxd and am wondering if anyone else has. mine have been:
epilepsy seizure disorder (non-epileptic) anxiety disorder multiple system atrophy... (laughable since i had already had the pd dxd over 15 years) conversion disorder gait disturbance makes me ponder.. how can they search for a cure for something that hasnt even been positively diagnosed?
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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04-02-2010, 03:11 PM | #2 | |||
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In Remembrance
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I notice that a lot of your dxs are really symptoms with enough of a name tag to keep you quiet long enough to get you out of the office. They didn't know that they were dealing with a pro.
I've been wondering about similar questions myself relating to my self dx. In 2000 I went to neuro 2 because I was having periods when I could barely walk. Neuro 1 had said essential tremor in 1992 and I had been stable since. The flu in 1999 changed things and March 2000 I was official. I wonder why symptoms have not changed in nature? Intensity and frequency, yes. But it is still periods of difficulty walking. Why do these also become paralyzing at times almost on a schedule? And why does potassium frequently rescue me from these as does B-complex? Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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04-02-2010, 06:13 PM | #3 | |||
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yea, well, i think we should be getting paid for all of the medical information they have been getting from us... lol
it doesnt take alot to research what our symptoms are and whether or not they fit into what these docs are dxd us with. is the medical community computer illiterate or just lazy?
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I have a post-encephalitic neurological disorder, but it does NOT have me! Last edited by harley; 04-02-2010 at 06:28 PM. |
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04-02-2010, 07:08 PM | #4 | |||
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In Remembrance
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I fear that they don't respect us and have no interest in what we have to say. But maybe that's just me.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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04-05-2010, 09:26 PM | #5 | |||
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Member aka Dianna Wood
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Hi Laura,
Problem Noted
The "No's" behind each of the above diagnosis mean the diagnosis has not been resolved. Vicky |
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04-05-2010, 11:24 PM | #6 | |||
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Member
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gadzooks vicky!
so, the only thing they are sure of is that you have problems with a weak bladder? "ahem" "cough"... well, all i can say is, "p-i-s-s on em!"
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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04-06-2010, 01:09 AM | #7 | |||
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Member aka Dianna Wood
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The weak bladder was fixed by sling surgery. Have you looked up the definition of Organic Disorder? I think you'll be surprised by the similarity between this and one of the disorders you have been diagnosed with.
VL |
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04-09-2010, 11:03 PM | #8 | ||
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Junior Member
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Oh boy! I feel like a snowball rolling downhill. I try to be positive, but sometimes i don't know how many more things can happen and how many more drugs I can take. I go to all these specialists and keep getting diagnosed with other conditions. Since being diagnosed with PD, I now have psoriatic arthritis, hypertension, retinal vain occlusion, carpal tunnel(had surgeryalready) osteopenia, and most recently, diabetes. I have had major depression, anxiety, and excecutive dysfunction along with tremors,dystonia,etc with the PD. 5 years ago ,I walked 2-3miles/day, was 40lbs lighter,was 52 and took 0 meds. Now I'm on so many meds and look like I'm 72. I continue to have a good attitude and have been working out for 1-2 hours/day. I am also trying to be involved in more activities. I think there is another thread about a similair subject. Excuse my spelling and other errors. We have to keep on keeping on. Cheers, Franny
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Last edited by franny623; 04-09-2010 at 11:09 PM. Reason: printing size too big |
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04-09-2010, 11:08 PM | #9 | ||
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Junior Member
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Sorry print is so big.Franny
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04-09-2010, 11:10 PM | #10 | ||
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Junior Member
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Oh boy! I feel like a snowball rolling downhill. I try to be positive, but sometimes i don't know how many more things can happen and how many more drugs I can take. I go to all these specialists and keep getting diagnosed with other conditions. Since being diagnosed with PD, I now have psoriatic arthritis, hypertension, retinal vain occlusion, carpal tunnel(had surgeryalready) osteopenia, and most recently, diabetes. I have had major depression, anxiety, and excecutive dysfunction along with tremors,dystonia,etc with the PD. 5 years ago ,I walked 2-3miles/day, was 40lbs lighter,was 52 and took 0 meds. Now I'm on so many meds and look like I'm 72. I continue to have a good attitude and have been working out for 1-2 hours/day. I am also trying to be involved in more activities. I think there is another thread about a similair subject. Excuse my spelling and other errors. We have to keep on keeping on. Cheers, Franny
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