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04-13-2010, 11:13 AM | #1 | |||
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In the New York Times today - it is "discovered' that it might be important to listen to patients when they talk about their own symptoms ...!!! ....
Excerpt: He argues that doctors, researchers, drug makers and regulators should pay more attention to patients’ firsthand reports of their symptoms while they take medicines, because their information could help to guide treatment and research, and uncover safety problems. Direct reports from patients are rarely used during drug approval or in clinical trials, Dr. Basch says. If patients’ comments are sought at all, they are usually filtered through doctors and nurses, who write their own impressions of what the patients are feeling. Read the whole thing here.
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony |
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"Thanks for this!" says: |
04-13-2010, 01:21 PM | #2 | |||
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im tellin ya, we need our own conference
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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04-13-2010, 01:32 PM | #3 | ||
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In Remembrance
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Are we living in the same worlds? Are these journalists actually serious? Could there be sarcasm that we are not picking up on?
If not, then it's no wonder no one is in a hurry.
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paula "Time is not neutral for those who have pd or for those who will get it." |
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04-13-2010, 10:23 PM | #4 | |||
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"Duh" was about the most appropriate descriptive word I could think of, too, indigogo. This is a no-brainer, but maybe we have this old adage at play. My mother used to say- "If you keep telling something over and over (even if it's not true), pretty soon others will believe it."
So let's say it again and again and again - LISTEN TO THE PATIENT; YOU JUST MIGHT LEARN SOMETHING ABOUT HOW TO BETTER TREAT THEM! Peg |
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