NeuroTalk Support Groups - looking for input...

Debi:
It seems to me you have now received what amounts to an information overload, but nevertheless valuable patient input. Now, it will be interesting to see how you market your program. Perhaps "M" of MJFF would do the TV promo soliciting volunteers for the clinical study? We will all be interested in reading about your efforts. There are some creative participants on this forum who would, I believe, be willing to help.

Bob C

Quote:

Originally Posted by Debi Brooks (Post 650902)

I originally posted this to better understand preferences in general terms...mostly with trial documents in mind (which sets the stage for how researchers use the terms) not so much with marketing in mind. Although we will also be producing trial collateral that will be shared with folks considering participation in the trial ("possible PD" -- just diagnosed or possible diagnosis and likely unmedicated for at least 6 months and... the "controls" which are non-blood relatives willing to participate in the same panel of exams for the 3 to 5 year period so we can compare changes in clinical and biological features over time).

So, I'm interested in avoiding terms that will confuse or turn people off...yet needs to be accurate and useable.

Great help so far...

Debi