Hi folks,

Well, I was absolutely stunned to receive a notice from my MDS that he wished to follow me on Twitter! At first I thought it a little odd than quickly started thinking of the possibilities. We tend to wall ourselves up within the cozy confines our our forum(s), and Twitter is finally a way to knock down those walls and bring together the larger PD community. If we could get more doctors and even some researchers on board this could be phenomenal. The best part is that it is as anonymous or full disclosure as you would like and way easier to get going than Facebook.

We actually come together through lists or hash tags. I have a main idea and then lists - I created two. One for Neuro Talk (NT) and another LWP (Living with Parkinson Disorders). Davis Phinney is there. So is Grant Hill. The biggie is my doctor is there and he sees what I am Tweeting and what any of you are Tweeting.

This is one of my doc's latest Tweets:

PD misconception#2 - PD only affects my movement. Truth: There are many common symptoms in PD that are unrelated to movement!


Of course, we already know this, but not all PWP out there are members of Neuro Talk I give my doctor huge props for seeing us as important enough to connect this way; we may not be "equals" but it is a colossal step in the right direction. Please give it a try!

I have sent out personal invites to some of you in my main gmail account. If I didn't contact you personally, it does not mean you are not welcome. Connect to my profile at http://twitter.com/LGGE

Laura