radioguy and welcome to NeuroTalk.
i had to jump in here...LOL

you should see how they act here in texas about snow. they not only clean out the stores of basic supplies...but ice cream...chips...soda's. cracks me up. not like it is going to last long at all.

we got snow yesterday. big pretty fluffy stuff. it was gone by nighttime.

i'm one of the mean ole mods here. jk...i'm not very mean.

my dad has pd. my folks are moving next weekend less 2 miles from me, so i can be of more help with the caregiving. i'm hoping to get them active here. this is an awesome group.

ps...i lived in minnesota for 4 years...so i understand about the snow and cold.

To me... ALL food is "comfort food."

I thought that ultrsound of the major veins and ateries in the legs is done so routinely for pregnant women who are at risk of blood clots forming and ending up as "embolisms", that could travel to the brain or heart or lungs and be a life and death matter. About two years ago; the only way i had to convince the medical system that i had something seriously wrong with me was to have an ambulance trip up to the hospital, and upon spitting out a mouthful of bloody goo, they started to seriously look for blood clots. CAT with dye proved the pulmonary embolisms, but ultrasound never did see anything in the legs. I assumed that it was my fist warning of staying in bed too long. I still sometimes get localized pain and "lumps" if I sleep in the same position for more than 6 hours.
I don't really know if they have a good way of predicting blood clots and where they will form, unless by doing regular whole body CAT dyed scans, which is an unlikely thing.
Whatever; blood clots scare the Bejesus out of me cs

Robert and ol'CS,
Thanks for your replies, however, I think all is OK, the swelling is starting to go down. I am wearing an elastic hose, so whether that has really helped I don't know.
Robert,.I used to take Amantadine about a year ago, but stopped when I switched from Pergolide to Mirapex. While I was taking it, I had no swelling or other problems.
ol'CS, Yes, the medical profession doesn't take a lot of notice sometimes, you have to use all manner of tricks to make them sit up and take notice. It took me a year to make them X-ray a shoulder joint which came adrift after a heavy fall. Then they went overboard and took 6 X-rays and an MRI scan!!! Hope you are keeping well.
Ron

Physically, I am still able to handle this thing, because thank God I don't have to work (that's almost bragging, isn't it 1). I just couldn't do it, and I think of all of the rest of us who MUST work, or sleep somewhere without a roof, have food to eat, and/or, buy meds.
Psychologically, I'm having a really rough time, and find it difficult to live by the same credo that I have admonished others to do in the past. My wife is so afraid that we won't be able to continue as a married couple; you know, all the same reasons. She wants to travel, I can't. She wants a stable future, PD doesn't want to give it to her. And working and taking care of a fourth child (me ) are wearing thin after a decade with the beast.
I have been taking a break from here just because life is so painful and I feel that it is selfish to share my personal troubls with you PWP, because there are so many of you out there who are in worse shape than I am.
Anyhoo, my pain is well under control, thanks to my new neuro, who is excellent, I get out for a few minutes a day to walk, still don't need any help with day to day mandatory chores (light duty, keeping clean and shaven, etc.). It's just that my antidepressant isn't working up to snuff. I can't get off of Effexor to try anything else, and I can't seem to kick the daily blues. cs

cs, I was cross-tapered from Effexor onto Cymbalta in about a month. That was just before surgery last October, so I can't tell you what feels normal yet. I think what I need the most is a completion of the remodeling of my bathroom, a project begun last March. I still haven't had the opportunity to draw a tub of water and sit there. It would feel so good on my hip sometimes. PAN? If I come downstairs, it will be because my roommate demanded a turn in the bathroom!!

Jaye

cs, you silly guy

This is exactly the place you can share 110% of your woos. Especially in Steve's weekly update thread. Sure we all have our respective woos.

Please share away!

Jaye, this was one thing that encouraged me to post. I tore our shower room apart before last summer and lets just say that progress has been delayed slightly. I cant move what with fixtures and drywall all over the basement and am no closer to having something useable. Talk about motivation.

Healthwise - turning 59 and 4 years 1 mo since DX. No meds yet but the tremor is becoming a little irritating. Would be nice to have something take the edge off besides benadryl. Back on the treadmill and it sure helps me to feel better. Perhaps a treadmill for the arm would help.

take care ,,, ken

So sorry to hear you are waiting to hear about potentially more medical problems. (I'm late posting this - was out of town a couple of days...)

You hang in there and let us know how you are doing.

CS..That news is a bummer.. ..This disease has its way of taking things slowly..In that short speech of mine at Congressman Langevin's press conference I touched a bit on the ways pd takes from us and the burden on the caretakers..


"Parkinsons Disease is a progressive debilitating disease for which
there is no cure..I was diagnosed with Parkinsons Disease in May of 2004 and had, had noticable symptoms for appoximately 2-3 years prior..Parkinsons Disease is a disease of loss, and all those afflicted with it lose not only their physical abilities, but eventually lose their ability to preform in their given occupations..Some will lose material possessions and wealth and some even lose their marriages due to the burden of caretaking and the emotional and finacial strains on the relationship"


You have helped so many here, myself most certainly included..Its good that you shared this with us so that hopefully we can help you

I hope somehow things work out for you..You will certainly be in my thoughs and prayers my friend