Parkinson's Disease Tulip


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Old 05-06-2010, 11:13 PM #1
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default getting our point across at BIO

Peg and i attended the BIO international conference in Chicago this week. It was attended by 15,000 researchers and related businesses. We represented pdtrials.org but there are few patients there so we really end up talking about their ideas [one man want to start a non profit treatment dev company] what all the orgs were about and answer their questions. they discover how much we know and everybody goes away learning something.

This year there was a man waiting in the morning for us. He was a researcher from Switzerland whose father in law has pd. he is working with gangliosides and was surprised that i knew a little about them.

peg directly asked them if they were going to have patients on their boards and they said yes. They were not happy with pharmas.

Well i have to say that we are quite a site. Peg staggers and crashes into me and we both are quite unstable and appear drunk. peg falls backwards and i pitch forward. My daughter, who is almost 25 went for the second time and i gotta admit she is a looker. we don't wear the standard black business suits - we are patients. with colorful clothes and our drunken looking stagger, tripping, heads swaying and my inaudible mumbling and lips squeezed in, along with my daughter , especially her, cause almost every man to do double takes. You know how booths attract people with candy and trinkets -well we didn't need any...lol

She points out to me that guys always do double takes at any girl under 30. But to her mother, it's sheer hysteria to see a guy walk forward with his eyes looking to the side.

ok enough of that.In the meantime, we all learn something.

Tues at lunch we listened to CEO Jim Greenwood sit down with pres. bill clinton and George Bush jr. THey are good friends and have started a real drive to rebuild Haiti.We listened for an hour. Bodyguards everywhere and thousands of people. We were sitting at VIP table #1.

We are letting our symptoms hang out. BIOS motto is "heal, feed and fuel the world." We let them focus on why they are there. We are making friends.

More tomorrow. Bill and George were themselves, relaxed, but i don't know about clinton - he has that tight look, and a tremor.

on wednesday it was al gore. we are blessed.
more later exhausted beyond description
__________________
paula

"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 05-07-2010 at 12:34 AM.
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