Parkinson's Disease Tulip


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Old 02-15-2007, 09:37 PM #41
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Steffi, actually no to both of those but I did learn my second w word in the same week- second 4-letter w word weally, I mean really.

That would be wang; the first one being wonk - or was it wonky? As in talk wonky?

Bemm, do you know anyone who has had a bad experience?

Never hurts to mix wit with wisdom.

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Old 02-15-2007, 11:45 PM #42
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Yes, Paula, unfortunately I do. I know a very sweet woman in Norway who apologized for not wearing her teeth when she served us afternoon coffee - she said the lower ones kept moving and made it hard for her to speak. And my son's kindergarten teacher's uppers broke, and the repair lasted over two weeks.
I'm sure there must be a great many people who are perfectly satisfied, but I would not do it myself unless there was not an inkling of a chance of avoiding it, and I had to choose between dentures or death. Drastic I know, but there you have it. I'm 'hys' about teeth.

The orange peel teeth - oh yes, I have an old photograph of my friend and myself, age 10 or 11, with masses of soft, square teeth sticking out in all directions. Remember the stinging lips that follow? We couldn't stop laughing when we looked at each other and in the mirror. They've been a big hit with children and grandchildren too.
A piece of black paper covering one or more teeth was good for a shock and a laugh as well.
I wish I'd known the peppermint trick. I'll show that one to the grandkids, they will love it. Thank you Steffi. If you have any more fun tricks up your sleeve please tell.

Got to laugh - makes reality less oppressive.

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Old 02-16-2007, 07:37 AM #43
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Default Am crying again...with laughter

Oh Paula and Birte...you make me smile so much.

Birte...you have got me thinking about dentures now.NO!!! Not for ME just yet. Heck no. Oooh...I`m digressing again from what I was going to write first but sorry..I have just honed in on a thought.
Dentures and Parkinsons.Do you reckon when they fit us with falsies,they have to use Superglue? You know...to stop our teeth from shooting out of our mouths at an alarming rate,when we are "off" our meds.What a fighting force we would make.Instead of a line up of "archers" with bows and arrows...a line up of Parkies . [think epic films here folks]
Right men....open mouths ....aim...and FIRE!!!!!

Forget what I was going to write...this will do for now. Doh!
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Old 02-16-2007, 01:02 PM #44
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Careful Steffi! Falsies has a different meaning in the USA......or at least it used to.....back when way more people had dentures than falsies. Now applying your imaginary scenario to our meaning of that word and you have......wait...they did that in an Austin Powers movie- it was hilarious!


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Old 02-16-2007, 03:56 PM #45
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Default No? !!!!!!!!!!!!!!!!!!!!!!

EXPLODING BOOBS!!!!

WAYYYYYYYYYYYYYYYY TOO FUNNY.

I`m going to close this thread.I am in danger of getting struck off the site.
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Old 02-16-2007, 04:17 PM #46
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Paula -

Do not, I repeat do not have your teeth pulled. Do everything to save them. Aside from the effect it will have on your appearance, you will have a tough time chewing, you will have soreness when the plates do not fit properly and once your teeth are removed, the gums shrink and the plates then certainly do not fit properly. Not having your own teeth causes you to change your eating habits and this often leads to a deficit in your nutrition and hence your health declines. How do I know all this? My parents could afford dental visits for their six kids but not for themselves. They had all their teeth extracted and thereafter word dentures. My mother said she regretted it every day of her life once she had done it. It was a drastic thing they did, but finances forced it. This is 2007 and there are things they can do in dentistry which should enable you to avoid a set of dentures.

I am actually thinking of giving up Sinemet because it causes me to grind my teeth during the day - not while I sleep - during the day. It would be impossible to wear a mouthguard during my waking hours and talk so that others understand what I am saying. So far cutting the Sinemet in half has reduced the grinding but not eliminated. I am taking my parents' advice and trying to protect my natural teeth. I may have to lose them some day, but I am going to delay it as long as possible.

Do not have your teeth pulled.

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Old 02-16-2007, 04:51 PM #47
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Default Ann

You speak a great deal of sense...please forgive my frivolity.
It is only tongue in cheek and serves the purpose of getting me through a major concern.
I am interested...how much Sinemet are you on? It would be good if I could do the same..I grind my teeth dreadfully. If you do cut your dose...what will be the implications? I might give it a go but am on 4 tablets a day.Is that enough to consider knocking off one or two do you think? My neuro has only just increased my requip.Will soon b e on 16mg a day.

Thanks for your input.
x
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Old 02-16-2007, 06:39 PM #48
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Default sinemet reduction with mucuna?

I have not seriously pursued a disciplined attempt to replace all or part of my own sinemet with mucuna, but it is on the list. The elimination of the carbidopa component might be beneficial (after all, why is your body so determined to counter the ldopa presence and is it wise to overrule that?) And the mucuna has a lot of other chemicals in it that may be even more important than the dopamine. So it is worth thinking about. I have used it enough that I can attest to the fact that it really does work.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 02-16-2007, 06:59 PM #49
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Default Requip

That is a lot of Requip Steffi. It can make you feel worse, so be very aware. It creeps up on you: slowly your feet get clumsy, you have to lie down after taking your pills, your head buzzes, etc. etc.
That is my experience. Your's may of course be completely different and much better. I hope so.

All the best,

birte
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Old 02-16-2007, 07:18 PM #50
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Default Bemm...re-requip

Is it Birte? To be honest,if I don`t improve with the 16 mg I am instructed to increase again over a further 4 week period to 24 mg.
Am I loaded?
What concerns me is...what happens after this?
Is it the brain surgery or are there more drugs I can take.

thanks for the warning
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