Parkinson's Disease Tulip


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Old 07-04-2010, 08:20 AM #11
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
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reverett123 reverett123 is offline
In Remembrance
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Join Date: Aug 2006
Posts: 3,772
15 yr Member
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I, too, would not exist without l-dopa, but I do think it is not used properly. For one thing, if it does do some damage in the course of doing some good, should we not be taking preventive measures such as antioxidants along with it?

For another, when we start ldopa we are cautioned to avoid protein, amino acids, some B vitamins, etc. These are the very things that the body uses to make its own supply. Since unused capacities tend to atrophy, taking that first tablet is a momentous decision that is not fully explained to us.

I believe that part of the problem comes from an unconscious view within the medical community that PD is an old folks disease and that if one can be kept functioning for 20 years, then some other ailment will solve the problem. That view breaks down quickly when one is a 30-year old looking at a tremorous hand.

We need (and are in the midst of) a complete reexamination of PD and even, as Dr. Langston suggested in his essay, may need to rename the mess and start over with open minds.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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