Parkinson's Disease Tulip


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Old 02-04-2007, 09:43 PM #11
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Default Carolyn call me

Call me at the hotel when you arrive at PAN. Can't wait to see you!!

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This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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Old 02-05-2007, 01:10 AM #12
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Dear Steve,

We had to pay the vet $400.00 to find our kitty has kidney failure and arthritis in her back hips. Was worth every penny. It is amazing how much love a kitty or dog will give you no matter how bad a mood you happen to be in.

Carolyn, your post's are pretty despite how you seem to feel. Maybe a little will help you get through your biopsie. I wish you alot of and hope the day of your biopsy isn't or ice. We all and we will if the results of your tests are. We will all pray and girl.

Love,
Vicky
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Old 02-05-2007, 07:27 AM #13
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Colder than a Highway Patrolman's Smile here in Maryland this morning. I feel like such a sissy -- I grew up in Iowa and North Dakota, but the older I get the less I seem to be able to handle this cold -- or extreme heat. There is, however, about a 33 second period in the fall and spring where I'm perfectly comfortable.

My tummy is finally getting used to the Stalevo 100 -- after being off meds for more than a year (my choice), it feels great to experience something close to "normal" again... I space my pills out during waking hours then take my first one right after getting up. I think there's some value -- at least for now -- in remembering how it feels to be unmedicated first thing in the morning so I can appreciate the difference.

I hope all are well as well can be! I have an ortho appointment on Thursday -- we're removing some hardware from a knee surgery I had 24 years ago.
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Old 02-06-2007, 09:07 AM #14
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Default Rendezvous and Chit Chat

Hi all (and if I try to address everyone I'll miss someone),

Dona, this thread IS a descendant of Rendezvous AND of Chit Chat. Cloudy took over Chit Chat when Bob C "retired", I took over from Cloudy, and Scott and i joined forces in a Chatterbox Cafe thread. I kept it up for as long as there was interest, but the thread waned more than waxed for a while. Then Thelma and others (sorry, I don't recall off the top of my head) suggested a "Check-in," and that became popular and still is. A couple of years ago I had the genius (as in, smartest thing I ever did besides marry my BBP) to tap Steve M. as my successor, and IMNSHO he's been perfect for the job. He's even started the thread in weeks of personal tragedy or sorrow, to show us that we CAN keep going in life. i met him in person at WPC and can't wait to greet him again at PAN.

Jaye

Last edited by Jaye; 02-06-2007 at 09:09 AM. Reason: remove a long nap on the space bar
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Old 02-06-2007, 10:05 AM #15
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Radio Guy...had to chuckle...Colder than a Highway Patrolman's Smile

You should have seen me all four times at the school bus stops yesterday.

My heavy fleece jacket until my winter down jacket. My wool scarf around my neck, over my ears and mouth, with my hood over that.
newsmile02.gif

I looked like one of those mountain climbers, nix the goggles.

The wind chill during the day was somewhere in the single digits, and the temp never out of the teens.

And, this PWP was born and raised in Central Florida (fourth generation), moving north in 2003.
Oh! what we will do for grandchildren
Didn't even own a coat of any kind until my oldest grandson was born in 2000 and I came here to watch his sister while mom and dad were in the hospital for four days after his birth...and it snow every single day I was here

Alas, the lazy hazy days of 87.gif will be here in a flash.
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Old 02-06-2007, 10:30 AM #16
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Default Cool Cat!!

Hey Carolyn,

Be sure to get in touch with Jean. She sure has a gorgeous Car. He looks like he could be a Maine coon cat. I love the breed. I bet he is a good cuddler. Maybe she will let you cuddle with him a few nights and he (the cat, could be a she) will help you during this hard time in your life. Animal Therapy should be used more for Parkinson patients.

Love your use of the smilies.

Vicky
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Old 02-06-2007, 10:43 AM #17
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Default Dear Jean

Sorry!! Open mouth, Insert foot. I apologize for the comments above. I also lost a kitty this year who was my shadow. I don't know what you must have been thinking when you read my post to Carolyn and I don't know what I was thinking when I posted it. "Mr. Kitty" looks like the perfect cat. He must have been very intelligent for a cat and sounds like he had the personality of a dog. What a delightful personality! Sounds like he broke the mold of all cats beeing standoffish. I am so sorry, Jean, for speaking as if your "Mr. Kitty" was still alive.

It will be a long time before you no longer have the feeling that he is following you into a room or sitting in one of his favorite spots. Jean, I may find myself unable to support "PAN", but I still admire your efforts to improve lives.

Vicky
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Old 02-06-2007, 11:35 AM #18
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Vicky..Thanks for your thoughts..It appears that my cat is going to be ok..She started to get somewhat of an appetite back yesterday, and was waiting impatiently to eat first thing this morning..Ive tried different foods and tried a jar of baby food which she completely devoured..and came back looking for more when she was done..


Jaye..I am looking foward to seeing you and the gang again, and of course meeting some of our other community members that I havent met as of yet..I also cant thank you enough for handing down to me the honor of posting the Weekly Check-In thread..It has been a growing experience for me both personally and spiritually, which has led me from the dire doom and gloom perspective of being dx with pd..to living a reasonably content and fulfilling live inspite of it, armed with a cache of knowledge and info to deal with and pass on about the many aspects of pd..the tricks of the trade so to speak..For that I am indebted to you, and everyone else here, because you have all had a very profound effect on my life..
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Old 02-06-2007, 03:26 PM #19
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Default jayne and steve

Your right jaye steve is doing a great job here Its been so long since I was at mgh I have been going back and forth trying to find it in some archives because when Scott and I both joined and caused a bit of commotion (totally unaware that we were really messing things up) I remember the rendevous thread being started for us to do what we wanted with it and try to behave ourselves and our big mouths. LOL for the life of me I kept thinking it was grumpy who started it but knew deep down that wasnt right since i know who grumpy was and when you said cloudy BINGO so thanks for reminding me I remember chit chat too but didnt know many people in there so unless I know someone or have something to offer (which isn't oftne I tended to stick to rendevous and I'm so glad to see in a way its still going Speaking of Scott does anyone still have his email our computer has crashed so many times we almost buried it a few times but thank heavens my daughter has a wonderfull guy who is a master at these things and now comes to our house to fix all the virus's I manage to drag home with me so I lost all my old email addies years ago but think Scott would like it here anyway thanks again and talk soon
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Old 02-07-2007, 04:38 PM #20
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Smile have fun

all of you going to pan, maybe ill go next time. ive been busy, moving to my 30 acre farm, trying to work out ouur separation, dealing with advancing pd, going to aa everyday... i am grateful that my life is so full! all of these activities could be seen as trials, depressing, dead ends, but i'ld rather see them as opportunities growth and to experience life.
i made contact last week with the local pd network and attended pd exercise class. it was the first time for me to meet other pwp. three of the seven people there had had dbs, one was in a wheelchair. although ive read alot about pd this experience was viceral. a shock.
this weekend i'm starting IV glutathione treatments for my pd, ill keep youu posted.
yours
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