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Old 07-05-2010, 12:19 PM #1
paula_w paula_w is offline
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Default need input for publication
must have by tomorrow but preferably today or it can't be used.

To those who have gotten DBS or are waiting for one [like blue dahlia], can you please list your reason (s} for moving over to the yes column and getting one?

One pwp said her dyskinesia actually caused her to kick a hole in her wall!

Thank you!
paula
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Old 07-05-2010, 12:49 PM #2
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Paula,

It's because of the dyskinesia and the uncontrollable sweats (I think my sweat glands are dyskinetic too )

And........I wanna eat my protein any darn time I feel like it!

Hopefully I'll gain a bit of weight. Starting to look like a dried out prune.
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Old 07-05-2010, 01:02 PM #3
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Default i hear ya blue dahlia
my grandson likes to feel my skin in a manner similar to how he used to play with play dough/ He pokes, pulls and twists the skin on the back of my arms - it still goes back to original shape at least. lol

thanks much!
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Old 07-05-2010, 01:56 PM #4
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Lyndy left message to me - don't know if she got reply- carl hernz says ok to use photo or whatever from him; and of course don't need to ask me; sent carl's e-mail address so you can talk to him directly in the future; he is working on starting regular internet show in october you want this guy (Carl, i'll send my bill)
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Old 07-05-2010, 07:50 PM #5
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Default finders' fee
Quote:
Originally Posted by Bob Dawson View Post
Lyndy left message to me - don't know if she got reply- carl hernz says ok to use photo or whatever from him; and of course don't need to ask me; sent carl's e-mail address so you can talk to him directly in the future; he is working on starting regular internet show in october you want this guy (Carl, i'll send my bill)
oh bob you deserve a large finders fee - i will tell lindy so she can pay you. just as soon as we get some money.
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Old 07-05-2010, 10:30 PM #6
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Default To cut back on intake of Sinemet
I had DBS 5 years past and still take about 75% less Sinemet before DBS. Saved my llife. Kidneys were breaking down because they could not handle the amount of protein my muscles were breaking down due to dyskenisias.
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Old 07-06-2010, 09:34 AM #7
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Default good reason
Vicky thank you. It's so complicated, this management of meds. I know my "tremor" is internal; it shows up on all the tests like EKGs. I wonder what is going on with us due to this internal shaking.

paula
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