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07-21-2010, 10:37 AM | #1 | |||
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I have an research idea, does any one know where to begin looking for funding? Is there some master list in the sky for PD research besides the obvious MJFox and NIH?
Thanks, Robert
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_________________________________________________ http://calipso-pd.org ...bringing a new wave of Parkinson’s support to central Illinois |
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07-21-2010, 11:16 AM | #2 | |||
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Senior Member
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[QUOTE=rd42;677512]I have an research idea, does any one know where to begin looking for funding? Is there some master list in the sky for PD research besides the obvious MJFox and NIH?
Robert, From what I have seen of government, private foundation, or corporate funding, there is no "one stop shopping" for research funding. Much of it is elusive and has to be hunt down on the Internet or collected in huge Grant directories at your local library. In fact, many larger urban libraries have a grants department with librarians solely responsible for gathering up all the acorns in one place. If you live near a big city, I'd first call the main city library and see if they maintain a grants database. I'm sure you might know this, but most of the money will be set aside for research scientists, so if you are connected this way...super! If not, the money may be all the more elusive. Finally, I have heard that MS patients funded a clinical trial of their own design, so that group would be a great resource. Trying to find that link... Laura |
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07-21-2010, 11:28 AM | #3 | |||
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[quote=Conductor71;677525]
Quote:
I can't wait to I get a little farther with what I'm working on so I can share it. I think the people here may find it interesting. Robert
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_________________________________________________ http://calipso-pd.org ...bringing a new wave of Parkinson’s support to central Illinois |
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07-23-2010, 01:32 PM | #4 | |||
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I'd love to have someone step forward to do research on the fava products...still no one has taken the challenge. It wouldn't be a pharmaceutical company..would have to be someone into natural healing options
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"Thanks for this!" says: | rd42 (07-27-2010) |
07-23-2010, 02:28 PM | #5 | ||
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Senior Member
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This is all madness.
$200 Million a year PD research in USA alone; similar amount in Europe; and Japan on this page, 2 projects add in dance music exercise research using different parts of the brain Not a word, not a one. I asked The Mysterious Anuket how many PD science studies are done in USA per year: One thousand four hundred fifty. Four a day, every day Rick could hammer together something dancers are all over the place in Parkie ville. Why? 1450 studies every year not counting other countries.' and pretty much nothing that we talk about here is on their list. The won;t even look at someone get out of a wheelchair and i have seen it hundreds of times. I guess I must be crazy. Like Amgen - i know docs who think that was all perfect and they woould do it too i don't want that doctor sticking needles in= my head i don't want those peopple in my life at all They don't make me better they make me sick |
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"Thanks for this!" says: | rd42 (07-27-2010) |
07-24-2010, 11:06 AM | #6 | |||
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In Remembrance
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Hi RD42,
Could you give an idea of which area the idea belongs to, ie is it an operation? Is it connected to a new class of drugs? Is it in the BBB area? No need here to disclose the idea. Depending which area it in, you can find a research group in that area, and they will be interested to take it into their work. Researchers tend to have blinkers on, and only consider proposals in the area they are working on. If it happens to involve infection in the body, I know the ideal group. Ron
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"Thanks for this!" says: | rd42 (07-27-2010) |
07-27-2010, 08:59 AM | #7 | |||
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Member
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Hi Ron,
The area of research is objective measurement of symptoms. I work in a research facility and have a tiny bit of funding but am looking for ways to continue. Thanks, Robert
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_________________________________________________ http://calipso-pd.org ...bringing a new wave of Parkinson’s support to central Illinois |
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"Thanks for this!" says: | lindylanka (07-27-2010) |
07-27-2010, 09:16 AM | #8 | ||
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Senior Member
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Maybe you need to talk to Debi!
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07-29-2010, 11:43 PM | #9 | |||
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Aunt Bean,
Perhaps the National College for Naturopathic Medicine in Portland Oregon or Bastyr College in Seattle would be interested in a research project . I know of one doc from Bastyr who left her practice to do NIH funded research on intranasal glutathione for pd. One would think there MUST be grant money just waiting for this...I'll talk to my naturopathic doc.... Regards, MD |
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07-30-2010, 01:29 AM | #10 | |||
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In Remembrance
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Hi Robert,
There are other groups doing research into objective measurement of symptoms, maybe you could combine with them. see http://www.sage-hindawi.com/journals...10/760196.html for example. Objective Quantification of Neuromotor Symptoms in Parkinson's Disease: Implementation of a Portable, Computerized Measurement Tool Spyridon Papapetropoulos,1 Heather L. Katzen,1 Blake K. Scanlon,2,3 Alexandra Guevara,1 Carlos Singer,1 and Bonnie E. Levin1,4 1Department of Neurology, University of Miami Miller School of Medicine, Miami, FL 33136, USA 2Sierra-Pacific Mental Illness Research, Education, and Clinical Center, VA Palo Alto Health Care System, Palo Alto, CA 94304, USA 3Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA 94305, USA 4Department of Psychology, University of Miami, Coral Gables, FL 33124, USA Received 6 August 2009; Revised 13 April 2010; Accepted 4 May 2010 Academic Editor: Fabrizio Stocchi Copyright © 2010 Spyridon Papapetropoulos et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. Abstract Quantification of neuromotor symptoms with device-based measures provides a useful supplement to clinical evaluation. Research using the CATSYS has established its utility as a computerized measurement system to quantify neuromotor function. The primary objective of this study is to provide technical guidance on the use of the CATSYS in Parkinson's disease (PD). Forty-four patients with idiopathic PD and 28 healthy controls were prospectively recruited and evaluated with CATSYS, a portable, Windows-based system consisting of a data logger and four different sensors (tremor pen, touch recording plate, reaction time handle, and force plate for balance recording) for quantification of neuromotor functions. CATSYS discriminated between PD and controls on measurements of rest/postural tremor, pronation/supination, finger tapping, simple reaction time, and postural sway intensity and velocity. CATSYS measurements using the proposed test battery were associated with relevant clinician-rated Unified Parkinson's disease rating scale (UPDRS) items assessing tremor and bradykinesia. More work is warranted to establish CATSYS as a diagnostic/monitoring instrument in movement disorders using the proposed technical approaches. Ron
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Diagnosed Nov 1991. Born 1936 |
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