Parkinson's Disease Tulip


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Old 07-21-2010, 10:37 AM #1
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Default Research funding

I have an research idea, does any one know where to begin looking for funding? Is there some master list in the sky for PD research besides the obvious MJFox and NIH?

Thanks,
Robert
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Old 07-21-2010, 11:16 AM #2
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Default Difficult to pin down

[QUOTE=rd42;677512]I have an research idea, does any one know where to begin looking for funding? Is there some master list in the sky for PD research besides the obvious MJFox and NIH?

Robert,

From what I have seen of government, private foundation, or corporate funding, there is no "one stop shopping" for research funding. Much of it is elusive and has to be hunt down on the Internet or collected in huge Grant directories at your local library. In fact, many larger urban libraries have a grants department with librarians solely responsible for gathering up all the acorns in one place. If you live near a big city, I'd first call the main city library and see if they maintain a grants database.

I'm sure you might know this, but most of the money will be set aside for research scientists, so if you are connected this way...super! If not, the money may be all the more elusive.

Finally, I have heard that MS patients funded a clinical trial of their own design, so that group would be a great resource. Trying to find that link...

Laura
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Old 07-21-2010, 11:28 AM #3
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[quote=Conductor71;677525]
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Originally Posted by rd42 View Post
... set aside for research scientists, so if you are connected this way...super! If not, the money may be all the more elusive.
Thanks for the info. Actually, my new job title is Research Scientist, so I fall into the "super" category. We almost got funding last month, but at the last minute the private investors backed out. (which was after they asked us to withdraw a refereed paper that had already been accepted it was my first one too)

I can't wait to I get a little farther with what I'm working on so I can share it. I think the people here may find it interesting.

Robert
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Old 07-23-2010, 01:32 PM #4
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I'd love to have someone step forward to do research on the fava products...still no one has taken the challenge. It wouldn't be a pharmaceutical company..would have to be someone into natural healing options
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Old 07-23-2010, 02:28 PM #5
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This is all madness.
$200 Million a year PD research in USA alone; similar amount in Europe; and Japan
on this page, 2 projects
add in dance music exercise research
using different parts of the brain

Not a word, not a one. I asked The Mysterious Anuket how many PD science studies are done in USA per year: One thousand four hundred fifty.
Four a day, every day
Rick could hammer together something
dancers are all over the place in Parkie ville. Why?
1450 studies every year not counting other countries.'
and pretty much nothing that we talk about here is on their list. The won;t even look at someone get out of a wheelchair and i have seen it hundreds of times. I guess I must be crazy. Like Amgen - i know docs who think that was all perfect and they woould do it too
i don't want that doctor sticking needles in= my head
i don't want those peopple in my life at all
They don't make me better they make me sick
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Old 07-24-2010, 11:06 AM #6
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Default Research ideas

Hi RD42,
Could you give an idea of which area the idea belongs to, ie is it an operation? Is it connected to a new class of drugs?
Is it in the BBB area? No need here to disclose the idea.
Depending which area it in, you can find a research group in that area, and they will be interested to take it into their work. Researchers tend to have blinkers on, and only consider proposals in the area they are working on.
If it happens to involve infection in the body, I know the ideal group.
Ron
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Old 07-27-2010, 08:59 AM #7
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Hi Ron,

The area of research is objective measurement of symptoms. I work in a research facility and have a tiny bit of funding but am looking for ways to continue.

Thanks,
Robert
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Old 07-27-2010, 09:16 AM #8
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Maybe you need to talk to Debi!
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Old 07-29-2010, 11:43 PM #9
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Aunt Bean,

Perhaps the National College for Naturopathic Medicine in Portland Oregon or Bastyr College in Seattle would be interested in a research project . I know of one doc from Bastyr who left her practice to do NIH funded research on intranasal glutathione for pd. One would think there MUST be grant money just waiting for this...I'll talk to my naturopathic doc....

Regards,
MD
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Old 07-30-2010, 01:29 AM #10
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Default PD Research

Hi Robert,
There are other groups doing research into objective measurement of symptoms, maybe you could combine with them. see
http://www.sage-hindawi.com/journals...10/760196.html
for example.

Objective Quantification of Neuromotor Symptoms in Parkinson's Disease: Implementation of a Portable, Computerized Measurement Tool
Spyridon Papapetropoulos,1 Heather L. Katzen,1 Blake K. Scanlon,2,3 Alexandra Guevara,1 Carlos Singer,1 and Bonnie E. Levin1,4
1Department of Neurology, University of Miami Miller School of Medicine, Miami, FL 33136, USA
2Sierra-Pacific Mental Illness Research, Education, and Clinical Center, VA Palo Alto Health Care System, Palo Alto, CA 94304, USA
3Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA 94305, USA
4Department of Psychology, University of Miami, Coral Gables, FL 33124, USA


Received 6 August 2009; Revised 13 April 2010; Accepted 4 May 2010

Academic Editor: Fabrizio Stocchi

Copyright © 2010 Spyridon Papapetropoulos et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract
Quantification of neuromotor symptoms with device-based measures provides a useful supplement to clinical evaluation. Research using the CATSYS has established its utility as a computerized measurement system to quantify neuromotor function. The primary objective of this study is to provide technical guidance on the use of the CATSYS in Parkinson's disease (PD). Forty-four patients with idiopathic PD and 28 healthy controls were prospectively recruited and evaluated with CATSYS, a portable, Windows-based system consisting of a data logger and four different sensors (tremor pen, touch recording plate, reaction time handle, and force plate for balance recording) for quantification of neuromotor functions. CATSYS discriminated between PD and controls on measurements of rest/postural tremor, pronation/supination, finger tapping, simple reaction time, and postural sway intensity and velocity. CATSYS measurements using the proposed test battery were associated with relevant clinician-rated Unified Parkinson's disease rating scale (UPDRS) items assessing tremor and bradykinesia. More work is warranted to establish CATSYS as a diagnostic/monitoring instrument in movement disorders using the proposed technical approaches.
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