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Am at the point of giving up being med-free, which is the least of all evils?

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Old 10-04-2012, 09:20 PM #1
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Default Rick's Aminos - Franchise now available
Just kidding.

The freference is to my current experimentation with compounds that purportedly raise the efficiency of the mitochondria and thereby relieve symptoms. They include acetyl-l-carnitine; creatine monohydrate; n-acetyl-cysteine; and quercetin. The first two (or three?) are amino acids, thus....




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What are Rick's aminos?

Trixiedee
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 10-22-2011, 10:28 AM #2
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Default before you take that pill . . .
Trixiedee

If I had it to do over again I would follow the recomendations of Janice Walton-Hadlock doccumented in the Parkinson's Recovery Project. The books are available for free download. Good Luck!

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I'm at the end off my tether with this dis-ease, this week I was due to take my kids away for a camping trip - our first holiday since I split from their dad 4 yeaars ago, but had to cancel because I'm too weak to walk any distance. I can just about drag myself around my house but that's my limit. I'm sick of life passing me by, I can barely hold myself up to type this. I am taking bucketloads of supplements, eating a very healthy diet, doing yoga, having acupuncture, craniosacral therapy, massage, counselling etc but am still sliding down. I am so tired all the time that I have no energy for exercise except very gentle yoga (but get high as a kite when i'm yogaing).

So I'm thinking seriously about starting meds - I can find very few positive stories about DAs so Sinemet seems to be the best bet. Am I right in thinking that it is possible to keep it on a low dose and keep that dreaded dyskinesia at bay for longer? Any advice would be gratefully received.

Aaaarghhhh!!!

Trixiedee
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Old 12-27-2011, 08:16 AM #3
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Originally Posted by Atma Namaste View Post
Trixiedee

If I had it to do over again I would follow the recomendations of Janice Walton-Hadlock doccumented in the Parkinson's Recovery Project. The books are available for free download. Good Luck!
From what I have heard her PRP is not even in existence any more and many people have followed it without success...

Thanks anyway

Trixiedee
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Old 10-03-2012, 11:00 AM #4
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Unhappy No need to suffer!
Quote:
Originally Posted by trixiedee View Post
I'm at the end off my tether with this dis-ease, this week I was due to take my kids away for a camping trip - our first holiday since I split from their dad 4 yeaars ago, but had to cancel because I'm too weak to walk any distance. I can just about drag myself around my house but that's my limit. I'm sick of life passing me by, I can barely hold myself up to type this. I am taking bucketloads of supplements, eating a very healthy diet, doing yoga, having acupuncture, craniosacral therapy, massage, counselling etc but am still sliding down. I am so tired all the time that I have no energy for exercise except very gentle yoga (but get high as a kite when i'm yogaing).

So I'm thinking seriously about starting meds - I can find very few positive stories about DAs so Sinemet seems to be the best bet. Am I right in thinking that it is possible to keep it on a low dose and keep that dreaded dyskinesia at bay for longer? Any advice would be gratefully received.

Aaaarghhhh!!!

Trixiedee
Dear Trixiedee

You should o to med inm. In fact you should had done it long time ago.
You need to function for having a normal life. Ir quite as good as it gets. Please go inm to visit a neuro and get back ob track and commence ti enjoy life again.

Only be careful not to have too many proteins during the daytime as they compite with the levodopa.

Selegilin helps me a lot to eliminate headache and to have an excellent mood.

Diskinesias, there always be, but the benefits are unmeasurable compare to them.
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Old 10-03-2012, 02:43 PM #5
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I sent that message over two years ago. Have been on Sinemet and Azilect for 2 years and am doing well on them... Wouldn't touch agonists though!

Trixiedee
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