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Phelan McDermid Syndrome

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Old 08-13-2010, 02:30 PM #1
proudest_mama proudest_mama is offline
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Join Date: Oct 2006
Location: Chicago, IL dx 10/03 @ 43
Posts: 177
15 yr Member
proudest_mama proudest_mama is offline
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Join Date: Oct 2006
Location: Chicago, IL dx 10/03 @ 43
Posts: 177
15 yr Member
Default Phelan McDermid Syndrome
Has anyone heard of the disease called Phelan McDermid Syndrome? The granddaughter of a good friend of mine has it and I'm trying to steer her in the right direction.

Thanks much ...
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Terri

People will forget what you said,
people will forget what you did,
but people will never forget how you made them feel.

Quoted by: Maya Angelou (Reader's Digest Oct. 2006)
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Old 08-13-2010, 03:53 PM #2
Muireann Muireann is offline
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Muireann Muireann is offline
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Join Date: Mar 2008
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Default
Here's a few links on it:

http://22q13.org/j15/

and a Facebook page:

http://www.facebook.com/group.php?gi...897&ref=search
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