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07-18-2011, 03:13 PM | #11 | ||
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somewone have news about doctor paneri, is it really working or not?
Thanks everybody |
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07-18-2011, 09:31 PM | #12 | ||
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Sadly, we had to give up. We ordered two months of his pills and when they came, many were broken and crumbling and the instructions not at all clear to us. "Take the little brown pill in the morning with milk and the other brown pill at lunch with milk...then take the powder also with milk in the morning..." what? The pills looked very similar to each other and smelled, honestly, like dung. They also looked like dried and compressed dung. We just could not stick with it.
I too asked for some statistics of pwp he has helped but got nada, not even the "I can't talk about other patients because of confidentiality" language I half-expected. I hope anyone taking his concoctions gets some benefit. |
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"Thanks for this!" says: | imark3000 (12-01-2011) |
07-24-2011, 01:29 PM | #13 | ||
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Hello
I stopped taking dr Paneri treatment and diet after 5 months and i keep thinking i should go back to it ....it stopped as i was a bit lazy ,and there's a very specific order to take the pills Also i saw a real improvment the first 2 months only... though Paneri had warned me that PD would be cured in an average of 3 years it's true that one of the pill smells like dung ,i guess it was dung actually but isn't faecal transplant the next step for us ? And some very high end Probiotics like Dulac or Dr Ohira do contain faecal bacteria (that's why they're supposed to be more efficient ) so swallowing a lil' dung pill made sense to me As some of you may know i am following a transdermal Nicotine Protocol i received from the Public Hospital My treatment is working well ,but i must say i returned to Dr Paneri diet 2 months ago and it improved me even better than before I found out that DR Paneri diet is a strict Anti-Candida diet so my thought is traditionnal Indian Medicine,Ayurveda has identified PD as a kind of Candida/H.Pylori I must add that because of this,i am eating Broccoli twice a day since 6 weeks as Broccoli has been proven to make H.Pylori dormant after a minimum intake of 8 weeks All i can is that this strict candida diet,broccoli & Nicotine protocol are just making me better weeks after weeks,and they seem to be much more effective and to last longer I used to need my meds at 9.30 am...this week it seemed pretty ok to get them at 3 pm i am currently taky 2/3 of 1 mg azilect (i am slowly slowly decreasing the dose since 3 weeks ) and i take 1 sinemet lp 100/25 (my Neuro wanted me to be on 3 simet lp/day,i decided to gtry an other path ) |
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"Thanks for this!" says: | moondaughter (11-30-2011) |
11-30-2011, 04:56 AM | #14 | ||
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Bonjour Villiers. Is there a way I can get in touch with you ? I also live in Paris. And would like to know more about your experience with Dr Paneri's method. Thank you. JM Selva.
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12-01-2011, 06:27 AM | #15 | ||
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Salut Jmselva !
i just sent you a message in your box check it ! |
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02-13-2012, 06:31 PM | #16 | ||
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Bonjour,
Pouriez vous me dire si vous avez continue avec le traitement du docteur Paneri ? Vous pensez que ce traitement peut guerir parkinson ? merci, |
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02-19-2013, 06:53 PM | #17 | |||
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Junior Member
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How goes Dr Paneri therapy? Are you still doing it or are you just doing the nicotine patch therapy only. Would like to know any information of both therapies good or bad. Thanks.
__________________
John Diag. Mar 2008 YOPD, @ age 39 |
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02-19-2013, 10:58 PM | #18 | ||
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Great if Paneri's protocol is helping anyone, more power to them. |
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02-20-2013, 11:33 AM | #19 | ||
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Junior Member
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Hello
I have stopped Dr Paneri treatment but i have continued the Nicotine protocol ,that my Neuro,the brilliant Pr Gabriel Villafane is giving me ... I am now on a 31 mg dose every day...my last visit to him was 2 weeks ago this is done in a french public hospital,Villafane is the Director of the Neurologic dpt so this is very serious and official,French State funded research... Ok,i am gonna write it ...Villafane is now with 3 cases of totally cured PD patients through his Nicotine protocol...when i say cured it means that the patients don't have to take meds,Nicotine patches...they are cured A german and american Big pharma lab have bought his research and there should be some specific Nicotine meds coming up in about 2 years The Nicotine seems to be very efficient for Alzheimer,PD and most Neurologic disease Concerning my case,i am far from cured but definitely much,much better than 2 years ago (when i started the Nico ) i don't have severe fatigue,continuous transpiration,and i def shake much,much less than before. I am taking sinemet 100 ,four times/day . Sunshine helps a lot too . this past summer,for 3 days and half in a row,i was able to function almost normal,without taking any sinemet at all it was gorgeous So my guess is that PD is def not just a dopamine related disease . it seems melatonin,and serotonin are key factors for me and my PD . i did not post anymore about my nicotine great progress,as i received so many nicotine bashing comments,when i did report last year. it seems Nicotine takes about 4 years to transform in very good,radical way a PD patient. there is light in this dark tunnel,dear PD fellows !! |
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"Thanks for this!" says: | moondaughter (02-20-2013) |
02-20-2013, 11:52 AM | #20 | ||
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Senior Member
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Villiers,
I am so happy for you that you are feeling better. When we were first dx'd, we began using a nicotine patch, first 7mg, then ultimately had to go up to 14mg...we tried, later, to use the 21mg but it was just too much. How in the world do you tolerate 31mg? Do you get one big shot of nicotine first thing in the morning, or is it titrated out over the day? Is it a patch, or do you eat it, chew/suck it, inhale it, drink it, what? Do you get nauseaus (sp)...how do you handle that? The patches we used were a 24-hour patch, and just for those curious, we would put the patch on first thing in the morning, prepare to feel sick at first, then it would take effect, and last through the day....had to take it off a few hours before bed or we could not get to sleep. If you had a meeting or something you really needed to be functioning for, it was almost like magic in how it would turn things on. As time wore on, though, for us, it became less effective and seemed to make the offs more harsh and harder, so we had to quit. It was like mucuna in a few ways, one being, it would turn you on pretty much consistently, and, sorry to be crude here, it would help with constipation every time (this was before coconut oil which also helps immensely in that dept.). We used the patch for the first 2+ years post-dx, along with the infernal mirapex (Lord how I wish we could get off of that!), before having to go on sinemet. I wonder what would happen if we went back to the patch? How did you introduce taking nicotine into your daily regime, and how much have you been able to reduce your sinemet since starting the nicotine? Thank you so much for being brave and sharing your experience. Don't pay any attention to the nay-sayers. If something is working for you, go with it, just don't forget to let all of us know! |
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