Parkinson's Disease Tulip


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Old 09-29-2015, 03:08 PM #81
Canna Canna is offline
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Sunil,

I'm also curious about the results of the Paneri protocol. Frankly, I wouldn't ingest anything without knowing what's in it and how it was certified free of dangerous contaminants. However, as you must know, the protocol is based on Ayurvedic principals. I have worked with an Ayurvedic practitioner here in California and I have found the program she gave me does indeed make me feel better. There are plenty of simple techniques you can try without spending a dime and there are blends of herbs you can buy from a trusted source and put together yourself easily enough. I'd be happy to share info but don't want to spend time writing if you or others are not interested.
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Old 09-30-2015, 09:50 AM #82
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Quote:
Originally Posted by Canna View Post
Sunil,

I'm also curious about the results of the Paneri protocol. Frankly, I wouldn't ingest anything without knowing what's in it and how it was certified free of dangerous contaminants. However, as you must know, the protocol is based on Ayurvedic principals. I have worked with an Ayurvedic practitioner here in California and I have found the program she gave me does indeed make me feel better. There are plenty of simple techniques you can try without spending a dime and there are blends of herbs you can buy from a trusted source and put together yourself easily enough. I'd be happy to share info but don't want to spend time writing if you or others are not interested.
Hello Sunil

I would be very interested to hear from your experience with Ayurveda, i have been using Mucuna and Ashwagandha with good results ...i would be very interested if you could tell me about other herbs
i tried Sun gazing too and liked it very much
cheers
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Old 09-30-2015, 11:24 AM #83
lurkingforacure lurkingforacure is offline
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Originally Posted by Canna View Post
Sunil,

I'm also curious about the results of the Paneri protocol. Frankly, I wouldn't ingest anything without knowing what's in it and how it was certified free of dangerous contaminants. However, as you must know, the protocol is based on Ayurvedic principals. I have worked with an Ayurvedic practitioner here in California and I have found the program she gave me does indeed make me feel better. There are plenty of simple techniques you can try without spending a dime and there are blends of herbs you can buy from a trusted source and put together yourself easily enough. I'd be happy to share info but don't want to spend time writing if you or others are not interested.
We use mucuna currently along with sinemet but would be really interested in what other techniques and herbs you have had success with. I'm sure a lot of others here feel the same.
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Old 09-30-2015, 11:58 AM #84
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Hi Canna,
Love to hear your experience.
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Old 10-30-2015, 10:13 AM #85
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Default Dr Paneri

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Originally Posted by drtom80 View Post
Since it appears you cannot edit a post, I will add to my post.I had received Dr Paneri's Pd products and have been on them for 4 months. I appear to be better but it is important to follow the proper diet. I will keep regular posts.
Hi, I just got in touch with Dr Paneri for my husband and I wondered how you are getting along with your treatment? I am planning to call him and have a chat before I buy anything from him. Also as a Dr did you test the medication to see what it is made up of? Hope all is good with you. Thank you
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Old 11-05-2015, 01:39 PM #86
Ellis Mae Ellis Mae is offline
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Default Mucuna

Hi lurkingforacure! Can you tell me what type of mucuna you use. I'm new to the forum and am interested in trying this.
Ellis

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Originally Posted by lurkingforacure View Post
We use mucuna currently along with sinemet but would be really interested in what other techniques and herbs you have had success with. I'm sure a lot of others here feel the same.
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Old 11-06-2015, 12:40 AM #87
lurkingforacure lurkingforacure is offline
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Default Banyan Botanicals

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Hi lurkingforacure! Can you tell me what type of mucuna you use. I'm new to the forum and am interested in trying this.
Ellis
We use the powdered mucuna in 1 pound bags from Banyan Botanicals. We order several pounds at once and freeze the extras, saves on shipping. it is hard to find in their catalog, I think it is under "kapikachu" or something like that. I've posted about it here on the forum many times, just search under Banyan Botanicals and the threads should pop up.

We take 1.5 teaspoons mixed in a bit of water whenever the meds aren't working, which is often, unfortunately. It comes on much faster than sinemet, even if you have eaten, but....it doesn't last very long and it falls of rather abruptly. But if you need to get somewhere, or are stuck, it has been very helpful for us. Tastes awful, though, and stains like the dickens.!
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Old 11-06-2015, 07:32 AM #88
Ellis Mae Ellis Mae is offline
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Default Many Thanks!

I ordered a supplement of mucuna from NOW products. But will research Banyan Botanicals. Thank you!
Ellis
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Originally Posted by lurkingforacure View Post
We use the powdered mucuna in 1 pound bags from Banyan Botanicals. We order several pounds at once and freeze the extras, saves on shipping. it is hard to find in their catalog, I think it is under "kapikachu" or something like that. I've posted about it here on the forum many times, just search under Banyan Botanicals and the threads should pop up.

We take 1.5 teaspoons mixed in a bit of water whenever the meds aren't working, which is often, unfortunately. It comes on much faster than sinemet, even if you have eaten, but....it doesn't last very long and it falls of rather abruptly. But if you need to get somewhere, or are stuck, it has been very helpful for us. Tastes awful, though, and stains like the dickens.!
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Old 11-06-2015, 09:02 AM #89
soccertese soccertese is offline
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keep in mind that LURKING also takes an agonist and carbidopa/levodopa (sinemet) which will give different results than just taking mucuna by itself. without the carbidopa, most of the l-dopa will break down before it gets to your brain and form dopamine which may cause nausea and can't pass the blood brain barrier, that's why we take l-dopa, not dopamine. i'm not saying don't try it but you need to know a little bit about the chemistry here.
my impression is most people use mucuna as an adjunct to C/L. L-DOPA was first derived from mucana and i think fava beans before it was synthesized.

i wouldn't expect any better treatment of tremor from mucana but you have nothing to lose.
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Old 11-06-2015, 11:44 AM #90
Ellis Mae Ellis Mae is offline
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Default On Sinemet

Thanks for the info. Just put on Sinemet 3x's daily 25/100 and trying to define terms and understand the chemistry too. Another gentlemen mentioned an agonist also pramipexole - Mirapex. it is all so overwhelming but I image everyone here feels the same. Any suggestions - was on Azilect initially with primidone. After a week switched to Sinemet. Some relief.
Thank you!
Ellis
Quote:
Originally Posted by soccertese View Post
keep in mind that LURKING also takes an agonist and carbidopa/levodopa (sinemet) which will give different results than just taking mucuna by itself. without the carbidopa, most of the l-dopa will break down before it gets to your brain and form dopamine which may cause nausea and can't pass the blood brain barrier, that's why we take l-dopa, not dopamine. i'm not saying don't try it but you need to know a little bit about the chemistry here.
my impression is most people use mucuna as an adjunct to C/L. L-DOPA was first derived from mucana and i think fava beans before it was synthesized.

i wouldn't expect any better treatment of tremor from mucana but you have nothing to lose.

Last edited by Jomar; 11-06-2015 at 12:05 PM. Reason: fix quote tag
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