http://neurotalk.psychcentral.com/sh...hlight=banding

The videos referred to have been removed out of respect for Anne, whom I fear that I have lost contact with. If there is enough interest I could put one up for a short time, But read the thread and try it yourself. It will blow your mind.

http://www.youtube.com/watch?v=49ZBS...os=qCVkWkOCH0s

http://www.youtube.com/watch?v=VJQLw...H0s&feature=BF

http://www.youtube.com/watch?v=Qw0cM...H0s&feature=BF

http://www.youtube.com/watch?v=fbmj3...H0s&feature=BF

Hi Peony
I applaud your search for alternatives to living with side effects.
Tremor has always been my biggest symptom and I managed to go without starting sinemet for 12 years.
It has been a highly personalized journey and I have tried many of the suggestions listed. Eliminating, no trying to cut down, on stress by many changes in my life, has benefited me the most. That and making as much time as I could, for tending to my new set of needs, slowing down and getting LOTS of rest, usually helps reduce the tremor for me.
Best wishes to you. Victoria

Hi Lou Lou,

Does Evening Primrose oil help with your tremor?

If so, how much do you take?

Thanks!

I am having the same problems after 6 weeks on Sinemet. It has not helped my Tremor and makes be feel pretty lousey for an hour after taking it. I am at 3X 25/100. I see these post are old. Anybody got any more recent expierence to report? I felt much better before starting trement. If it's not going to help my tremor, why am I taking it?

Sorry, our neuro told us long ago that sinemet does not really help tremor...but it is supposed to help with stiffness and some of the other symptoms.

if you have a lot of tremor, I would really look into the cycling program that the Cleveland Clinic has researched, and you can read posts here by nancyclist who gets pretty good relief from her symptoms with cycling.

I was the one who started this thread a few years ago. Now, almost 7 years since Dx, I still have an impressive tremor, worse than any Parkie I've met, and I know a lot due to active membership in a large Bay Area PD organization. Unfortunately, I've never found a fix for it, and not for lack of trying. My neuro, and the NPF doc, as well as many other Parkies I know, maintain that the PD meds actually do help tremor for most but not all. Doctors say I should get DBS, which would very likely work for me, but I'm not ready for that step. I'm doing unusually well otherwise, except for some severe back, hip, joint pain, which is sometimes disabling, and may or may not be PD-related.