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Old 10-26-2010, 08:13 AM #1
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reverett123 reverett123 is offline
In Remembrance
  
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Patient defned PD
Harley got me to thinking about how I would slice-and-dice the PD pie. It is not a monolith, but what IS it then?

We differ on symptom sets, speed of degeneration, present state, body systems impacted, and more I'm sure.

Maybe a matrix of some sort with disease features across the top and the impact upon quality of life down the side? In fact, make QOL the feature reflected at any given time? Does that make sense?

At least I see why they don't want to discuss it.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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