hi peg,

should i have heard that comment about kids?

I'm paying everyone hundreds of dollars a month mostly pharmas and insurance companies and there is NO excuse for people dying because of drug shortages IMO.

And i do try to interact positively with pharma. Most businesses would never treat their customers this way and survive. We are stuck with whatever they dish out about these shortages.

there are 944 comments on that article.

Big pharma..Big money..They're in the business of selling pills period, and with a long term illness like pd, that costs alot of money to treat, for a very long time, its comes as no surprise that Amgen gave us the bums rush, and wouldnt even consider compassionate therapy for those who participated in their clinical trials, when they realized..ooops!!..This stuff works!!..and came up with an excuse to deny compasssionate use, those who had those brutal delivery systems surgically implanted in their bodies

I havent been following the "Sinemet shortage", but if it is what I think it is, and they are creating a shortage to drive up the price, then they are no better the OPEC, the oil cartel

Unfortunately govt, and corporate America translate right and wrong by "how much is this going to cost"?..Its not about people, its about profit

[QUOTE=paula_w;709896]"Those who don't care about human health should get out of the human health business."


That's a really good line. I'm going to remember that one and use it.


[/QUOTE

like bees to honey - this is LIFE! for example Social workers coommonly hhave histories of abuse - policeman often grew up with aa sense of powerlessness and lack of protection - coaches and school teachers often are those who grew up with little encouragement or guidance...and on and on

A man may fail many times but he is not a failure until he begins to blame somebody else ~ J. Paul Getty

just sayin'.....

(Coming from someone who has spent a lifetime giving her power away rresulting in a very fragmented heart)

not trying to say anything except I wish we didn't have to depend on big pharma like we do. They really have us over a barrel - we need their product and they are the only ones who make it.

I cannot thiink of another solution except don't buy their product - and . . . well, if we choose that optio, it would be a big boost for the funeral business!

I know what you mean Peg, but these are cancer patients.

re sinemet:

I took a full bottle of sinemet CR to the wpc because I don't take it anymore. There was a person who couldn't get it and really needed it. She was so grateful. That brought it home to me and made it real.

MD - i'm trying to make a connection but must be too thick right now. Are you saying we should just accept this? That must be easier for some than others I guess. We really have no choice tho do we?

[QUOTE=paula_w;710228]I know what you mean Peg, but these are cancer patients.

re sinemet:

I took a full bottle of sinemet CR to the wpc because I don't take it anymore. There was a person who couldn't get it and really needed it. She was so grateful. That brought it home to me and made it real.

MD - i'm trying to make a connection but must be too thick right now. Are you saying we should just accept this? That must be easier for some than others I guess. We really have no choice tho do we?[/QUOT

the distinction has to be made between acceptance and resignation - I deeply respect the anger and passion spurred by injustice -it all serves a purpose .
no - we donn't have to be resigned to greed andd abuse and hopefully its this anger which will fuel the change - sometimes i wish i could feel anger-better that than apathy -I'm not saying we should be apathetic-not at all @(#*$* no!

Greed, but encouraged by structure.
No contracts between buyer and seller.
If my company needs to purchase toothpicks for $3 billion a year for the next 5 years, we go out on the marketplace, find suppliers, make them compete for our business and then we sign a five year contract, renewable, with the chosen supplier.

Of course if the supplier does not deliver, the supplier has breached the contract and therefore loses the contract. They can't say "shortage" - they were hired by contract precisely so there would be no shortage, so they failed and are fired. They lost the contract.

PWP spend easily $3 billion a year on drugs. But we have no contract.
Any industry would eventually become as corrupt as Pharma, when they never even meet the customers. When the customers are not part of the equation, free enterprise does not work, unless you consider drug dealers and the Mafia to be free entreprise. Contracts? We don't need no stinkin' contracts, says pharma
No but we do. We need contracts with our suppliers
now it is entirely a one-way street, and it leads to Dante;s Inferno

Steve said:
" its comes as no surprise that Amgen gave us the bums rush, and wouldnt even consider compassionate therapy for those who participated in their clinical trials, when they realized..ooops!!..This stuff works!!..and came up with an excuse to deny compasssionate use, those who had those brutal delivery systems surgically implanted in their bodies."

Exactly... and this quote from the MSNBC article, uses almosst exactly the same words used by Amgen execs to "justify" ending te GDNF trials... "its a business decision"

from te article:
"But underlying them all (te drug shortages) is the profitability problem, said Jensen.

“Normally, it’s a business decision. That does lead to shortages,” said Jensen. "These are just not usually money-makers."

The people we vote for in our respective countries allow this to happen,It is clear that pharmaceuticals are more powerfull than our respective governments

Ipso facto all medicines we take have side effects.,truth is we have no choice,

Look at were we are ,why we ended up here in the debacle of global illness management and crippled health budgets.
we live in a blame culture that halts progress and greed is a driver.If we all worked together, would we have a better medical system and a healthier population who valued nutrition and physical exercise more than pills and potions.

Lifestyle changes, modifications in sleep or nutrition would they be adopted if they came with a patent? Dugs cure nothing but allow us to live broken,can we really blame the drug companies,we are as much a part of the problem as they are.
What's wrong with the parkie drug market, the years of research development have seen to many drugs with close similar action patent is kings.
Its not about cure no its money and competition getting the biggest market share .Wasted years for those of us who dont have time to waste.
Always the suggestion of a cure but a prescription is the best offer.
Medications we take more drugs higher doses as the disease advances were is the cure? Its a brief window of normality if your lucky The magic of medicine,because in real time its all most with PD have.
The future neuroprotection awaits exploitation its market value will be significant by 2014 when it will be a major and important component of the CNS market. Forecasts are already made until 2019. By that time neuroprotection will be an established part of the neurological practice.The market plan ironic without us there isnt one were a commodity not a disease

Big Pharma, Monsanto and foreign oil interests play us like puppets! So... we can eat local (who neeeds soy and corn syrup) buy gas from others (like Amoco and 76 which buy domestic oil-boycott Shell, Texaco and Chevron -the Arabs don't buy our oil!) and ...well...we could all join Fiona down in the rain forest......

or maybe find an effective way to combine levadopa rich plants with oils and who knows what else.....terrestris tribulus?? to make our own sinemet. anything is possible in this amazing world.

md