Parkinson's Disease Tulip


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Old 11-17-2010, 09:58 PM #1
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pegleg pegleg is offline
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pegleg pegleg is offline
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Default New DBS Perks

TG - I hadn't heard about the DBS multi-color lead - what is its benefit?

A guy in our support group went to a VA in Virginia and is testing a new 9-year battery! I think 3-5 years was previously the life (of the battery lol)

It was a big decision (and still is) t o do a clinical trial requiringn brain surgery - not just the risks, but it usually excludes you from other trials. Why? Because if you have had something surgically implanted, the new treatment may cause problems (like an interaction) or the research will not be able to tell if it was the implant or the new treatment.

Jean - how many trials have you been in? I think all total, I have been in 4 - and one was surgical.
Peg
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Old 11-17-2010, 10:26 PM #2
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Lightbulb let me count

Peg,

I think around 10 clinical trials for me. The first one lasted 2 years for a new drug. (I joined that first trial 6 months after my diagnosis) Then follow-on trials/studies including SPECT scan trial, and 2 trials with my husband (as control) for biomarkers.

My doctor is also a researcher and they call me if there is a study that I qualify for.

Jean
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This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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