Parkinson's Disease Tulip


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Old 09-30-2010, 07:10 AM #1
Debi Brooks Debi Brooks is offline
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Default DVR / Tivo Alert! /CNN special on PD

http://www.cnn.com/video/#/video/hea...ght.cnn?hpt=C2

This is a teaser for a one-hour special that will air tonight on CNN about PD, MJFF and our new biomarker study, PPMI.

Tonight on CNN
8pm EST
5pm PST

Hope you can watch!

Debi
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Old 09-30-2010, 12:59 PM #2
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Thanks, Debi. I like Michael's analogy with the bus. Hope to watch it.

Peggy


Quote:
Originally Posted by Debi Brooks View Post
http://www.cnn.com/video/#/video/hea...ght.cnn?hpt=C2

This is a teaser for a one-hour special that will air tonight on CNN about PD, MJFF and our new biomarker study, PPMI.

Tonight on CNN
8pm EST
5pm PST

Hope you can watch!

Debi
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Old 09-30-2010, 08:10 PM #3
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Great segment. I was swaying and rolling with Michael.
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Old 11-15-2010, 02:20 AM #4
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Default Ppmi?

hi debi,

is mjff working with ninds on the biomarkers study?


"The NINDS intends to fund a multi-site, multi-project network (Parkinson’s Disease Biomarker Identification Network, or PD-BIN) devoted to identifying biological markers for PD risk, onset, and/or progression, in order to facilitate development of disease-modifying treatments."

http://grants.nih.gov/grants/guide/r...NS-11-005.html

thank you,
rosie
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Old 11-15-2010, 11:27 AM #5
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Default PPMI and PD-BIN

NIH reps have been part of the ongoing biomarker work in PD for years...they actually were non-funding partners of our first biomarker discovery RFA in 2002. Over the past several years, as we have convened scores of experts for input on next steps for biomarker candidate verification (these discussions led to PPMI), folks from NINDS and FDA have been included--plus they've convened some meetings of their own (that we have been part of).

So, the good news is that NIH has heard extensive input about the critical next steps for developing markers of progression. The even better news is that while early on they didn't think they would be able to contribute financially the PPMI public/private partnership (all along there was an expectation that some in-kind contributions would be made--Andy Singleton at NIA is running the genetics core for instance) it seems funds are now available to direct toward biomarker verification. The RFA you cite is a reflection on that newfound money and the RFA elements strongly reflect the scientific conversations that have taken place over the past several years.

The PPMI study has been encouraged to apply to the RFA for funding and is doing so. Given the aligned design elements, we remain extremely optimistic that PPMI will receive NIH support. We should hear next year but in the meantime, we aren't willing to wait and are proceeding with our efforts full steam ahead.

Hope this helps.

Debi
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Old 11-15-2010, 11:44 AM #6
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Default Pd Show tonight

I'm confused? Is this an old recording that is being used for the teaser?
I have seen this interview before. Is it just part of a hour long show?
In any case, thanks for the alert.




Quote:
Originally Posted by Debi Brooks View Post
NIH reps have been part of the ongoing biomarker work in PD for years...they actually were non-funding partners of our first biomarker discovery RFA in 2002. Over the past several years, as we have convened scores of experts for input on next steps for biomarker candidate verification (these discussions led to PPMI), folks from NINDS and FDA have been included--plus they've convened some meetings of their own (that we have been part of).

So, the good news is that NIH has heard extensive input about the critical next steps for developing markers of progression. The even better news is that while early on they didn't think they would be able to contribute financially the PPMI public/private partnership (all along there was an expectation that some in-kind contributions would be made--Andy Singleton at NIA is running the genetics core for instance) it seems funds are now available to direct toward biomarker verification. The RFA you cite is a reflection on that newfound money and the RFA elements strongly reflect the scientific conversations that have taken place over the past several years.

The PPMI study has been encouraged to apply to the RFA for funding and is doing so. Given the aligned design elements, we remain extremely optimistic that PPMI will receive NIH support. We should hear next year but in the meantime, we aren't willing to wait and are proceeding with our efforts full steam ahead.

Hope this helps.

Debi
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Old 11-15-2010, 12:00 PM #7
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Default hope this helps

Victorialou - Debi is just responding to a new post in an old thread - no new TV show, just new information on PPMI
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Old 12-21-2010, 08:38 AM #8
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Default CNN to replay special on Christmas Eve

If you missed Michael J. Fox’s conversation on Parkinson’s with Dr. Sanjay Gupta on CNN this past September, tune in on December 24 when CNN will be re-airing the special at 6 p.m. (US ET). In this special report, Michael speaks about his experience with Parkinson’s disease, the Foundation’s landmark study to identify PD biomarkers, and the crucial need for greater participation in clinical trials.

As a reminder, the special is also available for on-demand viewing on The Michael J. Fox Foundation’s Web site.
http://www.michaeljfox.org/newsEvent...cle.cfm?ID=671

Debi
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