[bluedahlia]

Had my DBS surgery on the 20th. Am home healing and feeling good. Will see how this goes.

[jeanb]

I hope you feel better and better with each day.

Please keep us informed.

Jean

[girija]

[QUOTE=bluedahlia;728665]Had my DBS surgery on the 20th. Am home healing and feeling good. Will see how this goes.[

I hope you continue to feel good and benefit from dbs.
Please keep us posted.

Wishing you the best
Girija

[Sawyer]

Originally Posted by bluedahlia

Had my DBS surgery on the 20th. Am home healing and feeling good. Will see how this goes.

My Dad had this done last year in three procedures, but I have heard of people getting it done in one. May I ask how many procedures it took you?...

Glad your doing well with it.

[ol'cs]

the lenghts that so many very courageous people go to; in order to keep living with this horrible disease. I wish you much success in your getting the DBS procedure. You've got more "guts" than i have, that's fer shure!!!!!!!!!!!! cs

[bluedahlia]

I had it done all at once. Dr. Lozano has done it so many times, he just whizzed through it and asked me if I wanted the battery attached that same day. I told him, as long as they put me out, they could do whatever they wanted. LOL!

Being awake through most of it was awful, but it's over and done with. I'm feeling good one week out. Will keep you all posted.

cs, I couldn't live the way I was living before.

[ol'cs]

blue- i know you mustn't be feeling like typing right now, but in he event you do, could you please elaborate on what "i couldn't live the way i was" means exactly?
i'm interested because, although we've heard other people who frequent this site tell us that they've had the DBS, not many tell us "how bad they were that they finally relented and had the procedure done.
What i'm asking is, could you walk unassisted; could you live in an apartment and keep it up with minimal help; were you falling a lot; were you confined to bed more often than you were up on your feet" could you prepare your own meals; could you dress yourself without too much of a struggle; was your ability to lead an independent life even possible? To me, DBS is a "last resort" for PWP, and from what we've read about outcomes, not a particularly succcessful one, especially when you don't get great aftercare.
I realize you probably don't feel up to answering these question's, but maybe in a a month or so? cs

[bluedahlia]

I'm feeling well enough to answer.

I was either dyskinetic or very rigid. No inbetween. Losing weight because of the severe dyskinesias. 114 lbs. at 5'5''. My QOL was 0. I was only taking 5 100/25 levo/carbi and was extremely sensitive to trhe stuff. Cutting it in half didnt eliminate the dyskinesias.

It feels so good to not be jumping about. LOL!

[1990nyboy]

Dahlia, my wife will be having DBS with Dr Lozano in February. Did you have STN target DBS or PPN target? We live in Boston and have been to Toronto twice to meet and be evaluated by him and his team for PPN target. Seems like a really fine person. My wife's MDS at Harvard described him as "the best neurosurgeon in the world." Pretty good endorsement. My wife is eager to get this done. Things are very rough for her.

Good luck.

Howard

[bluedahlia]

I would have to agree with your wife's doctor. I had STN placement. Going in tomorrow to have my staples removed. Not looking forward to that.