Parkinson's Disease Tulip


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Old 01-02-2011, 11:51 PM #1
curem curem is offline
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Thanks so much for your encouraging words and warm welcome! As for whether or not I have an infection, I assume that I don't but I have no way of knowing for sure.

In any case, when (if?) I do make the leap to meds, I will absolutely look into Sinemet.
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Old 01-02-2011, 06:18 PM #2
soccertese soccertese is offline
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soccertese soccertese is offline
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Default a good starting point

http://www.nwpf.org/wellness/Physica...dications.aspx

you've got a dopamine deficiency. eventually we all need more dopamine or a dopamine analog. sinemet has been around for 30 years or more. you may feel a major improvement after the first dose but regardless, there's no danger in trying it for a week and then discontinuing it . at least you'd have peace of mind that it's effective if you absolutely need something in the future.

pd is a chronic illness and whether you are taking "natural" supplements or a synthetic drug there are going to be side affects. dopamine in sinemet is synthesized but is a simple amino acid. unfortunately when your brain doesn't make enough just like when your pancreas doesn't make enough insulin you have to take an external source and the challenge is getting the right amount in the bloodstream and even then the neurons in the brain don't always need the same amount of dopamine it seems.

getting ahead of myself here. in my opinion, no big deal to try sinemet, bigger commitment to try an agonist.

bigger question, do you have insurance and seeing a doctor? did you get a 2nd opinion?
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Old 01-03-2011, 12:05 AM #3
curem curem is offline
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Soccertese,

For some reason I found your post very comforting. I like the idea of thinking of sinemet as an amino acid for my brain rather than a hardcore PD drug.

I also really like the idea of perhaps trying it to see if my symptoms dissappear. A relationship with no commitment is right up my alley!
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Old 01-03-2011, 04:46 AM #4
driel00 driel00 is offline
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Hi Curem, I'm also a newbie on this site but chatted for a year on another site. Your concern is echoed by most of us with "Parkie Flu" So know that you have lots of love and support here

VLHPerry brought out an important consideration...form a team. When DX 3 years ago, I saw a neuro who wanted me on meds immediately. So, being a health teacher, I saw a MD specialist for a second opinion, naturepathic Doctor specializing in neuro disorders, and a physical therapist to establish baseline data. That was my team!

So now, with input from all, I'm taking neuro-protective supplements, an MAO-B inhibitor, mucuna, exercising and reducing stress. Seems so be working fine so far FOR ME.

But each of us is unique so you might think about forming your "team" if you are financially able. We wish you all the best on this journey. Don
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