Parkinson's Disease Tulip


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Old 10-18-2014, 01:37 AM #1
mypata mypata is offline
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Default Nicotine Patch

Hello Villiers,

I am new in this forum but I read almost all threads about Nicotine patch therapy.

I have read your comments and reply and I have also search on a PUBMED,

There are few studies with Nicotine patch therapy and everyone used different does,

Can you please let me know how are you and how is your Parkinson since you have started (2010 as per your post) Nicotine patch therapy?

What does of Nicotine are you on after 4 years?

Does protocols allowed to go only up to 20 mg per day of Nicotine?

Few studies I read - they have increased does much faster than the one you have mentioned and reached almost up to 105 mg per day,

Your comments and experience is much appreciated,

Thanks in advance,


Quote:
Originally Posted by villiers View Post
Dear comrades

I want to share with you the meeting i had with you with Dr Gabriel Villafane 3 weeks ago.
Dr Villafane is a brilliant and passionate scientist
,he is in charge of the Neurology department at Hopital Lionel Vidart in Creteil (France )
they have develloped since 9 years a protocol treatment for Parkinson using Nicotine patches.
They are getting very amazing results .
There,they told me,straight in the eyes,that the MINIMUM BENEFITS YOU CAN EXPECT IS TO STOP THE PROGRESSION OF PD !!
but this is the minimum,as for many patient,pd is stopped and the symptoms are very softened and even for some cases the symptoms ARE 90% REVERSED !!(it shows inversion of the disease on the DAT-SCAN)
my jaw dropped when i heard this .
this was the first time during my 7 years journey with PD ,that an "official" neurologist was not telling me PD as irreversible and degenerative .
I was really & happilly shocked

to enter the protocol,you must be on levadopa drugs .
I am on sinemet 100/10 .I take 1 pill 3 times/day presently.
you must NOT TAKE THIAMIN (vitamin B1 ) supplement ,as it would interfere with the nicotine.eating red meat is also a big No-no .
the patches have to taken everyday & for the rest of your life. (so this is not a cure but a treatment)
it takes about 9 months ti get some visible improvments,for some people less than 9 months

Here is the protocol they gave.
to respect the timing and graduality is crucial
you must patch yourself on a different part every 24 h
those parts are :under your belly button ,on the right,then the following day left,then the following day in the end of your back on the right,then the following day on left
you must change your nicotine patch every 24 h
Nicopatch was the brand recommended,but just because of the dosage

first 3 months : 3,5 mg nicotine patch per day (so you cut a 7 mg patch in half )
month 3 to 5: 7mg "" "" "
month 5 to 7 :10 mg " " "
then 14 mg for 6 months
then 17 mg for next 3 months
then 20 mg " "

I know Nicotine has a bad health image because of the cigarettes but it has medical properties.

*edit*

If you decide to consult Dr Villafane,there's 4 months waiting list,& you must come to your consultation with
-a DAT-SCAN
-recent electro cardiogram
-recent blood analysis

without these,you would have to come back & wait another 4 months
I personally have started the Nico since 2 weeks,and yes i am feeling better : )
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Old 10-22-2014, 07:03 AM #2
mypata mypata is offline
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Default Nicotine Patch

Request for a reply from any experienced user of Nicotine Patch,

What next - once you have reached 20mg?

Should we continue 20 mg per day or there are few studies on a pubmed which says about going up to 100 mg per day for few months, though no long term study available,

Kindly reply, I am now about to reach 20 mg per day does.


Quote:
Originally Posted by mypata View Post
Hello Villiers,

I am new in this forum but I read almost all threads about Nicotine patch therapy.

I have read your comments and reply and I have also search on a PUBMED,

There are few studies with Nicotine patch therapy and everyone used different does,

Can you please let me know how are you and how is your Parkinson since you have started (2010 as per your post) Nicotine patch therapy?

What does of Nicotine are you on after 4 years?

Does protocols allowed to go only up to 20 mg per day of Nicotine?

Few studies I read - they have increased does much faster than the one you have mentioned and reached almost up to 105 mg per day,

Your comments and experience is much appreciated,

Thanks in advance,
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Old 10-22-2014, 01:59 PM #3
badboy99 badboy99 is offline
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Quote:
Originally Posted by mypata View Post
Request for a reply from any experienced user of Nicotine Patch,

What next - once you have reached 20mg?

Should we continue 20 mg per day or there are few studies on a pubmed which says about going up to 100 mg per day for few months, though no long term study available,

Kindly reply, I am now about to reach 20 mg per day does.
I suggest you follow Villiers directions closely. Everything you need is in there.

If your at 21mg now or will be soon. Wait as per his instruction for the next

titration which will be 24.5mg and so on. Follow his patching instructions and

diet guideline.
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Old 10-22-2014, 11:26 PM #4
mypata mypata is offline
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Default Nicotine Patch

Hi Badboy, thanks buddy for reply.

I live half world away from Dr Gabriel Villafene and there is a waiting period of almost 6 months and then doing follow up on a regular basis with him would have been a big challenge for me.

So I started NP by my own after reading a lot about it on a pubmed (scientific studies) and there are lots of positive discussions about NP in one the french nicotine forum (Thanks to google translate so I can understand their discussions),

My current confusion is, no where I can find Dr Villafen,s general guidelines for NP except some hints from communications by Villar in past.

What did Dr Villafen recommends you? If possible, please share as there must be many like me who doesn,t have a direct access of Dr Villafen and looking forward to live a better life with PD.

Quote:
Originally Posted by badboy99 View Post
I suggest you follow Villiers directions closely. Everything you need is in there.

If your at 21mg now or will be soon. Wait as per his instruction for the next

titration which will be 24.5mg and so on. Follow his patching instructions and

diet guideline.
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Old 10-23-2014, 09:14 AM #5
badboy99 badboy99 is offline
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Quote:
Originally Posted by mypata View Post
Hi Badboy, thanks buddy for reply.

I live half world away from Dr Gabriel Villafene and there is a waiting period of almost 6 months and then doing follow up on a regular basis with him would have been a big challenge for me.

So I started NP by my own after reading a lot about it on a pubmed (scientific studies) and there are lots of positive discussions about NP in one the french nicotine forum (Thanks to google translate so I can understand their discussions),

My current confusion is, no where I can find Dr Villafen,s general guidelines for NP except some hints from communications by Villar in past.

What did Dr Villafen recommends you? If possible, please share as there must be many like me who doesn,t have a direct access of Dr Villafen and looking forward to live a better life with PD.
You will not find the guidelines you seek. Villiers post is all you need sans a visit to France. You can also join the GP29 group.

I am on NT two years and have been up to 28mg. It works, stick to the titration schedule.
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Old 10-22-2014, 02:03 PM #6
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Quote:
Originally Posted by mypata View Post
Request for a reply from any experienced user of Nicotine Patch,

What next - once you have reached 20mg?

Should we continue 20 mg per day or there are few studies on a pubmed which says about going up to 100 mg per day for few months, though no long term study available,

Kindly reply, I am now about to reach 20 mg per day does.
It takes a while to reach 21mg. How long have you been on N.T?
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Old 10-22-2014, 11:15 PM #7
mypata mypata is offline
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I have started few months back and now at 14 mg per day. And next step for me is to reach 21mg per day as that,s commercially available patch.

Can you share your experience?
How long have you been applying Nicotine Patch and what are your observations?


Quote:
Originally Posted by badboy99 View Post
It takes a while to reach 21mg. How long have you been on N.T?
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Old 10-25-2014, 02:37 AM #8
Dan Murphy Dan Murphy is offline
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I started the Nicotine Patch on 10/19/14. I am at the 3.5mg level. I have had PD for 7yrs. I am currently on 25-100 Sinemet every 2hrs. I would like to start a dialogue with others on my progress as it relates to the Nicotine Patch. I will be following the schedule as indicated by the French Neurosurgeon on Neurotalk. Are there others that would like to share their experiences throughout the progress of using the Nicotine Patch.
So far my only symptom change during the brief time I have been on it is severe nasua. I did eat red meat (a no-no) and experienced severe shaking the following day so I shall heed the warning in the future on not eating red meat while on the patch. I promise to limit my shared experiences to the facts and not waste your time if you chose to maintain a dialogue.
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Old 10-26-2014, 02:06 AM #9
girija girija is offline
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I just started using nicotine patch too/ 3.5mg/day. yes, I would also like to compare notes with others who are using it/

Girija
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Old 10-26-2014, 07:12 AM #10
lurkingforacure lurkingforacure is offline
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Quote:
Originally Posted by girija View Post
I just started using nicotine patch too/ 3.5mg/day. yes, I would also like to compare notes with others who are using it/

Girija
Girija, could you please share with us your experience on how the DBS is going as well as how you feel the nicotine patch works for you?
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