Parkinson's Disease Tulip


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Old 10-28-2014, 06:24 PM #1
zanpar321 zanpar321 is offline
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Quote:
Originally Posted by Dan Murphy View Post
I recently asked you all to share your experiences with the NP. I only thought it fair that I tell you that I quit the patch. I started shaking after using 3.5mg patches for 5 days. I continued using the patch anyway. By the 10th day the shaking got so bad that I couldn't function. It was continuous . I hope all of you that try the patch have better success as we know we often have different experiences with medication and mine could be unique to me.
I also had significant shaking that I had never experienced before at about day 15 so have quit to reassess for now.
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Old 06-29-2015, 11:00 AM #2
villiers villiers is offline
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Default Nicotine patch therapy after 4 years and a half

Hello

so here is my update about Nicotine patch therapy since more than 4 years :

sept 2013-june 2014 :
i was at 21 mg, then 28 mg then 32mg
and very important , from October 2013 until June 2014 , i started juicing very very heavily every day (about 8 glasses a day ) especially green juices , coffee enemas about 2/3 times a day( coffee enemas makes your liver producing A LOT of Glutathione, search for GERSON therapy) , trying to avoid gluten but not so good at it :
this was the most extraordinary year i had ! and i am sure Juicing and Nicotine were a big part in this , as after 2 months of juicing , i did not need my sine met (750 mg/day) once every 10 days ,and after 4 months of juicing , i needed sine met only every other day , so 3/4 days per week , i was unmedicated for 36 hours and feeling great, i could walk, do anything ,did not need meds at night ....i was really experimenting recovery !! (it was hard believing it, when for 9 years , you have been told and retold that PD is uncurable and degenerative )
so for about 5/6 months the days without meds were fab , but the days when Levadopa was mandatory , my dyskinesias were more and more stiff , and very painful....but i was moving better and better , my walking was excellent especially

End of June 2014 : Catastrophic !! i don't know what happened but everything went out of control ,my body could not handle the Sinemet anymore, for 2 weeks , i had extreme dystonias and dyskinesias, the meds would last for 2 hours , or 1 hour or 5 hours...i felt lost , depressed, was in terrible pain ...so i lost courage, discipline...and stopped Juicing , enemas...

Sept 2014: I was told to stop Nicotine for 1 month , and restart from scratch , 1,75mg / day ...and then slowly increase every 3 months

June 2015 : I am now back at 14mg/day of Nicotine, i am taking 600 mg of Sinemet CL ,i very rarely drink juices...when the Sinemet is working, it has never worked that good ever before, no shaking at all/excellent walk/ excellent strength in the hands...my dyskinesias/dystonias are still very painful, (but this is due to Sinemet ,not Nicotine ),i had a Dat Scan last week, and compared to the One i had in 2011 just before starting , some numbers shows a small loss of dopamine neurons on some part of the brain,and the 2 others numbers show a GAIN of dopamine cells in an other brain's part !!....
Also now , when i wake up , i am in excellent shape , i can do whatever i want and only need to take my meds around 11.30 /noon (but i think the 10mg of melatonine do play some parts in those Sleep benefits )
One month ago, i experienced a no-meds day again...
I don't regret at All doing the Nicotine, i wished i had started it earlier...
the Dystonias/Dyskis induced by the meds are the big problem since 1 year
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Old 06-29-2015, 11:09 AM #3
BreezyRacer BreezyRacer is offline
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Villiers

How hard was the withdrawal when you had to quit the nicotine, especially at the high dose you were taking?
__________________
diagnosed with dystonia.
10 mg seligline
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Old 06-29-2015, 11:18 AM #4
villiers villiers is offline
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the withdrawal was a bit scary ...i had a few experiments where i felt my legs will not support me anymore , that i could not walk anymore (never felt like this before )...
but i had been Nicotine patching since 4 years so there was still some of it in my system...
Nicoderm patch trials are done by the Michael J fox Organisation , they should give some of their conclusions next year, i believe
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Old 10-25-2015, 02:15 AM #5
mkhalid mkhalid is offline
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Quote:
Originally Posted by villiers View Post
Hello

so here is my update about Nicotine patch therapy since more than 4 years :

sept 2013-june 2014 :
i was at 21 mg, then 28 mg then 32mg
and very important , from October 2013 until June 2014 , i started juicing very very heavily every day (about 8 glasses a day ) especially green juices , coffee enemas about 2/3 times a day( coffee enemas makes your liver producing A LOT of Glutathione, search for GERSON therapy) , trying to avoid gluten but not so good at it :
this was the most extraordinary year i had ! and i am sure Juicing and Nicotine were a big part in this , as after 2 months of juicing , i did not need my sine met (750 mg/day) once every 10 days ,and after 4 months of juicing , i needed sine met only every other day , so 3/4 days per week , i was unmedicated for 36 hours and feeling great, i could walk, do anything ,did not need meds at night ....i was really experimenting recovery !! (it was hard believing it, when for 9 years , you have been told and retold that PD is uncurable and degenerative )
so for about 5/6 months the days without meds were fab , but the days when Levadopa was mandatory , my dyskinesias were more and more stiff , and very painful....but i was moving better and better , my walking was excellent especially

End of June 2014 : Catastrophic !! i don't know what happened but everything went out of control ,my body could not handle the Sinemet anymore, for 2 weeks , i had extreme dystonias and dyskinesias, the meds would last for 2 hours , or 1 hour or 5 hours...i felt lost , depressed, was in terrible pain ...so i lost courage, discipline...and stopped Juicing , enemas...

Sept 2014: I was told to stop Nicotine for 1 month , and restart from scratch , 1,75mg / day ...and then slowly increase every 3 months

June 2015 : I am now back at 14mg/day of Nicotine, i am taking 600 mg of Sinemet CL ,i very rarely drink juices...when the Sinemet is working, it has never worked that good ever before, no shaking at all/excellent walk/ excellent strength in the hands...my dyskinesias/dystonias are still very painful, (but this is due to Sinemet ,not Nicotine ),i had a Dat Scan last week, and compared to the One i had in 2011 just before starting , some numbers shows a small loss of dopamine neurons on some part of the brain,and the 2 others numbers show a GAIN of dopamine cells in an other brain's part !!....
Also now , when i wake up , i am in excellent shape , i can do whatever i want and only need to take my meds around 11.30 /noon (but i think the 10mg of melatonine do play some parts in those Sleep benefits )
One month ago, i experienced a no-meds day again...
I don't regret at All doing the Nicotine, i wished i had started it earlier...
the Dystonias/Dyskis induced by the meds are the big problem since 1 year
Hi there:
Can i ask which brand of Nicotine patch you are using?

Regards
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Old 10-25-2015, 10:09 AM #6
badboy99 badboy99 is offline
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Any brand will do.
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Old 06-12-2016, 10:02 PM #7
grey wolf grey wolf is offline
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Default Questions about the Nicotine Treatment

I have PD and would greatly appreciate hearing how it has gone for you with the nicotine patch in France. Also: how do I go about initiating the treatment process with the hospital in France? Is there a website for them?




Quote:
Originally Posted by villiers View Post
Dear comrades

I want to share with you the meeting i had with you with Dr Gabriel Villafane 3 weeks ago.
Dr Villafane is a brilliant and passionate scientist
,he is in charge of the Neurology department at Hopital Lionel Vidart in Creteil (France )
they have develloped since 9 years a protocol treatment for Parkinson using Nicotine patches.
They are getting very amazing results .
There,they told me,straight in the eyes,that the MINIMUM BENEFITS YOU CAN EXPECT IS TO STOP THE PROGRESSION OF PD !!
but this is the minimum,as for many patient,pd is stopped and the symptoms are very softened and even for some cases the symptoms ARE 90% REVERSED !!(it shows inversion of the disease on the DAT-SCAN)
my jaw dropped when i heard this .
this was the first time during my 7 years journey with PD ,that an "official" neurologist was not telling me PD as irreversible and degenerative .
I was really & happilly shocked

to enter the protocol,you must be on levadopa drugs .
I am on sinemet 100/10 .I take 1 pill 3 times/day presently.
you must NOT TAKE THIAMIN (vitamin B1 ) supplement ,as it would interfere with the nicotine.eating red meat is also a big No-no .
the patches have to taken everyday & for the rest of your life. (so this is not a cure but a treatment)
it takes about 9 months ti get some visible improvments,for some people less than 9 months

Here is the protocol they gave.
to respect the timing and graduality is crucial
you must patch yourself on a different part every 24 h
those parts are :under your belly button ,on the right,then the following day left,then the following day in the end of your back on the right,then the following day on left
you must change your nicotine patch every 24 h
Nicopatch was the brand recommended,but just because of the dosage

first 3 months : 3,5 mg nicotine patch per day (so you cut a 7 mg patch in half )
month 3 to 5: 7mg "" "" "
month 5 to 7 :10 mg " " "
then 14 mg for 6 months
then 17 mg for next 3 months
then 20 mg " "

I know Nicotine has a bad health image because of the cigarettes but it has medical properties.

*edit*

If you decide to consult Dr Villafane,there's 4 months waiting list,& you must come to your consultation with
-a DAT-SCAN
-recent electro cardiogram
-recent blood analysis

without these,you would have to come back & wait another 4 months
I personally have started the Nico since 2 weeks,and yes i am feeling better : )
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