Parkinson's Disease Tulip


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Old 10-22-2014, 02:03 PM #31
badboy99 badboy99 is offline
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Quote:
Originally Posted by mypata View Post
Request for a reply from any experienced user of Nicotine Patch,

What next - once you have reached 20mg?

Should we continue 20 mg per day or there are few studies on a pubmed which says about going up to 100 mg per day for few months, though no long term study available,

Kindly reply, I am now about to reach 20 mg per day does.
It takes a while to reach 21mg. How long have you been on N.T?
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Old 10-22-2014, 11:15 PM #32
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I have started few months back and now at 14 mg per day. And next step for me is to reach 21mg per day as that,s commercially available patch.

Can you share your experience?
How long have you been applying Nicotine Patch and what are your observations?


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Originally Posted by badboy99 View Post
It takes a while to reach 21mg. How long have you been on N.T?
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Old 10-22-2014, 11:26 PM #33
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Hi Badboy, thanks buddy for reply.

I live half world away from Dr Gabriel Villafene and there is a waiting period of almost 6 months and then doing follow up on a regular basis with him would have been a big challenge for me.

So I started NP by my own after reading a lot about it on a pubmed (scientific studies) and there are lots of positive discussions about NP in one the french nicotine forum (Thanks to google translate so I can understand their discussions),

My current confusion is, no where I can find Dr Villafen,s general guidelines for NP except some hints from communications by Villar in past.

What did Dr Villafen recommends you? If possible, please share as there must be many like me who doesn,t have a direct access of Dr Villafen and looking forward to live a better life with PD.

Quote:
Originally Posted by badboy99 View Post
I suggest you follow Villiers directions closely. Everything you need is in there.

If your at 21mg now or will be soon. Wait as per his instruction for the next

titration which will be 24.5mg and so on. Follow his patching instructions and

diet guideline.
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Old 10-23-2014, 09:14 AM #34
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Quote:
Originally Posted by mypata View Post
Hi Badboy, thanks buddy for reply.

I live half world away from Dr Gabriel Villafene and there is a waiting period of almost 6 months and then doing follow up on a regular basis with him would have been a big challenge for me.

So I started NP by my own after reading a lot about it on a pubmed (scientific studies) and there are lots of positive discussions about NP in one the french nicotine forum (Thanks to google translate so I can understand their discussions),

My current confusion is, no where I can find Dr Villafen,s general guidelines for NP except some hints from communications by Villar in past.

What did Dr Villafen recommends you? If possible, please share as there must be many like me who doesn,t have a direct access of Dr Villafen and looking forward to live a better life with PD.
You will not find the guidelines you seek. Villiers post is all you need sans a visit to France. You can also join the GP29 group.

I am on NT two years and have been up to 28mg. It works, stick to the titration schedule.
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Old 10-23-2014, 09:54 AM #35
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Thanks for reply.
This is titration schedule given by Villiers,

first 3 months : 3,5 mg nicotine patch per day (so you cut a 7 mg patch in half )
month 3 to 5: 7mg "" "" "
month 5 to 7 :10 mg " " "
then 14 mg for 6 months
then 17 mg for next 3 months
then 20 mg " "

Was thinking what next after 20 mg, as no further schedule is given,
I was reading forum and according to one of the post, it can go up to 60mg.

Any comments?

And your comment, IT WORKS is very comforting.


Quote:
Originally Posted by badboy99 View Post
You will not find the guidelines you seek. Villiers post is all you need sans a visit to France. You can also join the GP29 group.

I am on NT two years and have been up to 28mg. It works, stick to the titration schedule.
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Old 10-23-2014, 11:01 AM #36
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Quote:
Originally Posted by mypata View Post
Thanks for reply.
This is titration schedule given by Villiers,

first 3 months : 3,5 mg nicotine patch per day (so you cut a 7 mg patch in half )
month 3 to 5: 7mg "" "" "
month 5 to 7 :10 mg " " "
then 14 mg for 6 months
then 17 mg for next 3 months
then 20 mg " "

Was thinking what next after 20 mg, as no further schedule is given,
I was reading forum and according to one of the post, it can go up to 60mg.

Any comments?

And your comment, IT WORKS is very comforting.
After 21mg every 3 months...

If you feel like it you may hold/stall for as many months as you want...

You'll have to figure out your upper limit by yourself...
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Old 10-23-2014, 11:02 PM #37
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Thanks Buddy,

Very helpful.


Quote:
Originally Posted by badboy99 View Post
After 21mg every 3 months...

If you feel like it you may hold/stall for as many months as you want...

You'll have to figure out your upper limit by yourself...
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Old 10-24-2014, 12:06 AM #38
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Quote:
Originally Posted by badboy99 View Post
You will not find the guidelines you seek. Villiers post is all you need sans a visit to France. You can also join the GP29 group.

I am on NT two years and have been up to 28mg. It works, stick to the titration schedule.
Badboy - i didn't realize you had been following this protocol for 2 years. How is it working for you? Are there particular symptoms that it improves? or is it improving all of them?
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Old 10-24-2014, 04:58 AM #39
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Anagirl,
Thanks for asking Badboy this question. I was intending to write same.
Let me share my experience as I am now few months with Nicotine,

Actually I started three things together,
1) NP
2) Accupuncture followed by Accupressure
3) Ayurveda

Currently facing five main symptoms,
1) Frozen shoulder
2) Slow movements
3) Rigidity - Annoying one is in a neck
4) Started having involuntary movements in Rt Index finger (During SMS typing) and Rt Leg whenever I am anxious or excited
5) Chronic fatigue

Currently I have stopped Ayurveda due to Nausea (Though I have read many people had good experience with it)

But since I have started Acupressure my Chronic Fatigue Syndrome has improved a lot. I can fill energy within my body. And I assume It has got also assistance from NP.

What,s your story?




Quote:
Originally Posted by anagirl View Post
Badboy - i didn't realize you had been following this protocol for 2 years. How is it working for you? Are there particular symptoms that it improves? or is it improving all of them?
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Old 10-25-2014, 02:37 AM #40
Dan Murphy Dan Murphy is offline
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I started the Nicotine Patch on 10/19/14. I am at the 3.5mg level. I have had PD for 7yrs. I am currently on 25-100 Sinemet every 2hrs. I would like to start a dialogue with others on my progress as it relates to the Nicotine Patch. I will be following the schedule as indicated by the French Neurosurgeon on Neurotalk. Are there others that would like to share their experiences throughout the progress of using the Nicotine Patch.
So far my only symptom change during the brief time I have been on it is severe nasua. I did eat red meat (a no-no) and experienced severe shaking the following day so I shall heed the warning in the future on not eating red meat while on the patch. I promise to limit my shared experiences to the facts and not waste your time if you chose to maintain a dialogue.
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