At 14 years after tremors and rigidity and loss of strength started my unmedicated symptoms started looking very much like MSA and were escalating much faster then progression of the initial sx . I had an extreme frozen shoullder and couldn't drive, or barely feed myself. Whhen I decided that I hhad little left to lose I started low dose of sinemet which i am still experiencing new improvements on 2 years later however i cut back my dosage at every opportunity from a max of 4 tabs per/day down to 1 or 2 on really good days . The med has given me back my life.

i thank god for the people who have recovered and i have met onne myself-these folks are bridge builders nno matter what brrand of pdism they recoverred from. i have heard that coleman worked at a copper mine but this is herresay hhowever i wouldd think acute manganese poisoning or lymes disease may be less complicated than idiopathic parkinsons. never underestimate the power of beliefs...positive and negative. one that i am reflecting on now is my belief that there are no easy fixes for me. iis tthat true? NO one can actually KNOW %100 that it iss true! yet my subconscious seems to hang onto it. so now the work is exploring the fears that feed the belief and surrendering those fears to a higher power because like poseidon told odysseus ...we are NOTHING without grace. sorry the typos

Moondaughter,

You are putting up a heroic battle and I applaud you. I send you my very best wishes for symptom relief and recovery. Belief has so much to do with how we become ill and the extent to which we recover. And negative beliefs are very difficult to manipulate.

Would it be possible to speak a little more of what you know of the person you met who has recovered, without breach of confidentiality of course.

what's the connection?
 

jinglebelle sent me a 3 word poem and i was to try to figure it out. i had company from texas and was going to think about it after she left this morning because i couldn't see it at first.

it was a thoughtful "stump".

jinglebelle emailed her thoughts and they are applicable in this thread i think. i'll give you an hour and then share what it means to jinglebelle. if you come up with something don't be shy - post it. and remember, it does have a connection to this thread.

how are these connected?

scientific

placebo

bumblebee

answer [april's view, there could be different ones] will be posted at 6:30 pm if i remember. i'd say there is a 50/50 chance i will remember to do it on time. it's actually a brilliant connection.

I'll take a stab
 

Scientific - a supposed truth that may not be
Placebo - a deliberate falsehood told as truth
Bumblebee - an observable truth that cannot be.


Which is Mr. Coleman? Probably a placebo

Am I close?

close to jinglebelle
 

Pam,

you are not incorrect. i should have said she wrote this before I read the thread. But i didn't ask her if she had based it on this thread or even if she read the thread. jinglebell will probably answer that. So Mr. Coleman may not be involved. i looked at it as a coincidence - a good one. i asked her permission to use it because it seemed so appropro.

Can you explain what you mean by the bumblebee being an observable truth that cannot be?

that sounds close to jinglebelles thoughts. [bumblebee]

let me add
 

that this is about the entire situation , not the coleman interview in particular, altho i did not ask jinglebelle if the interview inspired it. so think in terms of the whole treatment dev. situation.

i'm sure you will see it once explained but you have to be acquainted a little with bumblebees. there is no wrong answer. you were close tho if i understood you about bumblebees Pam.

I have always heard that aerodynamically a bumblebee is incapable of flight and yet….

I don’t even know if it’s actually true. When I was a child they told us that running water would purify itself in 100 feet. Hmmm.

that's right pam now link it all ?
 

source for pam's response and last hint:

http://www.bumblebee.org/faq.htm#Cantfly

http://www.maa.org/mathland/mathtrek_09_13_04.html

Science is what we get when we prove the answer
Placebo is what we get when we take someone else's word for the answer
Bumblebee is what we get when we're too dumb to figure out the answer

Now you have to tell. i've got nothing else.

ok here is jinglebelle's intent
 

Reality?

scientific
placebo
bumblebee

incidentally - scientifically - bumblebees can't fly. but they do.
scientifically placebos don't prove whether a drug works or not
they just prove that some people have within themselves to make
healing take place. Placebos can't heal. but they do.
and science? what is it? proof? maybe? but proof can be
manipulated for monitary gain and still be blanketed in an
official mumbojumbo "doctor speak" stated as scientific proof.
great, when it works, destroying, when it hurts, "evil, when it could heal
but instead, watches the caged - trade pain for addiction."


=====
i think we are all on the same path. i didn't know about the bumblebees so i would not have figured it out. i see many variations on this same theme but mostly i see that none of them are what they are designed to be. so anything is possible. scientific is designed to prove but it doesn't/placebo is not supposed to work but it does.

We are very open minded and tolerant of alternative treatments but this forum would not tolerate it 10 yrs. ago. i've learned to be open to whatever is reported and will say i feel better than i have in a while. people say i look calm and they can't tell. But just spend 5 min and you know something is off.

Point is, it's not over till the last lady sings...don't know where they got that original saying but it isn't very nice. i don't know how to be on one side or another in this unknown situation but looking at the history should help. if mr. coleman won't share his information, he needs to provide proof that it has worked somehow. i can't help but wonder where these people are. it's understandable that curing pd isn't happening with most of us.

But who am i to say it isn't true? i think a cure will be announced in a big way and was disappointed to hear that some pretty big claims have been proven to be inconclusive and downright untrue, like global warning being our fault or even that it is happening and bad data about vaccines that has led to the appearance of measles in the UK. ..lindy is that true?

ok it went together and i find jingle's poetry to be a challenge but don't get it very often without her help. Thanks for going along with it Pam.

We should do this more often.
:grouphug: