NeuroTalk Support Groups - Possible Treatments for TODAY's PWP

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- Parkinson's Disease (https://www.neurotalk.org/parkinson-s-disease/)

- - Possible Treatments for TODAY's PWP (https://www.neurotalk.org/parkinson-s-disease/1462-treatments-todays-pwp.html)

Quote:

Originally Posted by reverett123 (Post 11843)

Exciting research breakthroughs are all well and good for future generations, but if you are reading this they probably aren't going to arrive in time to help you, today's PWP.

However, there are things available today that have enough research behind them to warrant consideration. I propose this thread as a sticky to keep track of these so that they are not lost.

The type of treatments I am talking about carry varying amounts of risk and no one should assume anything about these. This is serious stuff and the decisions you make about them will determine the course of your life. Even choosing to ignore them will be a momentous one.

This is the place for promises not of just borrowing time with neuroprotection but of putting things to rights with neurogenesis. But that is where risk comes in. Things that trigger regrowth of nervous tissue could also trigger overgrowth and resulting tumors for example.

This is not to say that one should avoid risk - one cannot. And bluntly put, doing nothing but the treatments offered by our neuros has a clear end - and it is not pleasent. Each of us must decide for ourselves with the best information available to us. I hope this thread will provide a place to gather that information.

It truly is an individual decision

Quote:

Originally Posted by cris (Post 348121)

I'm new here and I dont know if you talked about it in the past - stem cell treatment.
what about treat PD with stem cells?
I just start to read about it, and I find this success stories at the frc-family research council.

what you think ?

Hi Chris, I just received stem cell treatment for pd. they say it takes 2months to really kick in. It's only been 6 days, but at least I'm no worse. See Facebook group called "adult stem cell therapy not embryonic," and stemcellpioneers.com and linked in group called "adult stem cell advocates."

Hi Owlish, this is my first post on this forum. I'm very interested in more information on your stem cell treatment. First of all how are you doing since the treatment? Under what circumstances did you receive these stem cells, clinical trial or other circumstance. Where did you travel to for treatment and what was. e cost?

I wasn't done posting and something happened but anyway I'd like to know the cost and where these cells were injected, I'm assuming your brain. Any details you'd like to share I'd appreciate. Do you feel any results? I know it's probably too early. Thank you.

Hello, I received a fetal stem cell tx a few years ago and saw very little improvement. I am going to try adult stem cell tx in a few months, and will post shortly after. As a side not, be careful dealing with a Dr Paneri, all he did was take my money and sent no products. Take care

Quote:

Originally Posted by drtom80 (Post 1134724)

Hello Dr Tom and welcome to Neurotalk...
May I ask if your fetel stem cell tx was human cells or animal?
I did an adult stem cell tx in Oct 2013, derived from adipose. I received 500 million cells. It didn't help my movement problems, (or maybe it did? perhaps I'd be worse?) but it definitely helped improve my energy levels. Best of luck to you!

Quote:

Originally Posted by drtom80 (Post 1134724)

Drtom, thank you for your input I'll be interested in the stem cell treatment you are getting. Where is this being done and by whom? Cost?
Best of luck wishing you the best.
Betsy

cycling as neuroprotection as well as symptom management

One treatment that research is showing us can have a neuroprotective effect is cycling. A recent broadcast on NBC Nightly News features Dr. Jay Alberts explaining what his research has found: How Patients Are Using Cycling to Slow Down Parkinson’s - NBC News . We don't have to wait for the FDA to approve a bicycle.

Quote:

Originally Posted by reverett123 (Post 11843)

Exciting research breakthroughs are all well and good for future generations, but if you are reading this they probably aren't going to arrive in time to help you, today's PWP.

New Hope for People with Parkinsonism

I am new to this forum, one of my friend who is suffering from Parkinson, his suffering made me join this forum in search of a proper answer.

Hi Robert

Welcome to NeuroTalk :).

The Parkinson's forum is very active; I hope that you will be able to learn things here which will help you to support your friend.

Best wishes.