Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 04-23-2014, 09:58 PM #41
mcolo mcolo is offline
Junior Member
 
Join Date: Apr 2014
Location: Irvine
Posts: 10
10 yr Member
mcolo mcolo is offline
Junior Member
 
Join Date: Apr 2014
Location: Irvine
Posts: 10
10 yr Member
Default Well said

Quote:
Originally Posted by reverett123 View Post
Exciting research breakthroughs are all well and good for future generations, but if you are reading this they probably aren't going to arrive in time to help you, today's PWP.

However, there are things available today that have enough research behind them to warrant consideration. I propose this thread as a sticky to keep track of these so that they are not lost.

The type of treatments I am talking about carry varying amounts of risk and no one should assume anything about these. This is serious stuff and the decisions you make about them will determine the course of your life. Even choosing to ignore them will be a momentous one.

This is the place for promises not of just borrowing time with neuroprotection but of putting things to rights with neurogenesis. But that is where risk comes in. Things that trigger regrowth of nervous tissue could also trigger overgrowth and resulting tumors for example.

This is not to say that one should avoid risk - one cannot. And bluntly put, doing nothing but the treatments offered by our neuros has a clear end - and it is not pleasent. Each of us must decide for ourselves with the best information available to us. I hope this thread will provide a place to gather that information.
It truly is an individual decision
mcolo is offline   Reply With QuoteReply With Quote

advertisement
Old 07-14-2014, 10:28 AM #42
Owlish's Avatar
Owlish Owlish is offline
Junior Member
 
Join Date: Nov 2013
Location: Northern Virginia, USA
Posts: 15
10 yr Member
Owlish Owlish is offline
Junior Member
Owlish's Avatar
 
Join Date: Nov 2013
Location: Northern Virginia, USA
Posts: 15
10 yr Member
Thumbs up Stem cell tx

Quote:
Originally Posted by cris View Post
I'm new here and I dont know if you talked about it in the past - stem cell treatment.
what about treat PD with stem cells?
I just start to read about it, and I find this success stories at the frc-family research council.


what you think ?
Hi Chris, I just received stem cell treatment for pd. they say it takes 2months to really kick in. It's only been 6 days, but at least I'm no worse. See Facebook group called "adult stem cell therapy not embryonic," and stemcellpioneers.com and linked in group called "adult stem cell advocates."
Owlish is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Betsy859 (07-28-2014)
Old 07-28-2014, 08:54 PM #43
Betsy859 Betsy859 is offline
Junior Member
 
Join Date: Jul 2013
Location: Maryland
Posts: 38
10 yr Member
Betsy859 Betsy859 is offline
Junior Member
 
Join Date: Jul 2013
Location: Maryland
Posts: 38
10 yr Member
Note

Hi Owlish, this is my first post on this forum. I'm very interested in more information on your stem cell treatment. First of all how are you doing since the treatment? Under what circumstances did you receive these stem cells, clinical trial or other circumstance. Where did you travel to for treatment and what was. e cost?
Betsy859 is offline   Reply With QuoteReply With Quote
Old 07-28-2014, 08:59 PM #44
Betsy859 Betsy859 is offline
Junior Member
 
Join Date: Jul 2013
Location: Maryland
Posts: 38
10 yr Member
Betsy859 Betsy859 is offline
Junior Member
 
Join Date: Jul 2013
Location: Maryland
Posts: 38
10 yr Member
Default

I wasn't done posting and something happened but anyway I'd like to know the cost and where these cells were injected, I'm assuming your brain. Any details you'd like to share I'd appreciate. Do you feel any results? I know it's probably too early. Thank you.
Betsy859 is offline   Reply With QuoteReply With Quote
Old 04-09-2015, 06:49 PM #45
drtom80 drtom80 is offline
New Member
 
Join Date: Mar 2015
Posts: 4
8 yr Member
drtom80 drtom80 is offline
New Member
 
Join Date: Mar 2015
Posts: 4
8 yr Member
Default

Hello, I received a fetal stem cell tx a few years ago and saw very little improvement. I am going to try adult stem cell tx in a few months, and will post shortly after. As a side not, be careful dealing with a Dr Paneri, all he did was take my money and sent no products. Take care
drtom80 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Betsy859 (04-20-2015)
Old 04-09-2015, 08:16 PM #46
anagirl anagirl is offline
Member
 
Join Date: Aug 2012
Location: San Francisco
Posts: 199
10 yr Member
anagirl anagirl is offline
Member
 
Join Date: Aug 2012
Location: San Francisco
Posts: 199
10 yr Member
Default

Quote:
Originally Posted by drtom80 View Post
Hello, I received a fetal stem cell tx a few years ago and saw very little improvement. I am going to try adult stem cell tx in a few months, and will post shortly after. As a side not, be careful dealing with a Dr Paneri, all he did was take my money and sent no products. Take care
Hello Dr Tom and welcome to Neurotalk...
May I ask if your fetel stem cell tx was human cells or animal?
I did an adult stem cell tx in Oct 2013, derived from adipose. I received 500 million cells. It didn't help my movement problems, (or maybe it did? perhaps I'd be worse?) but it definitely helped improve my energy levels. Best of luck to you!
anagirl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Betsy859 (04-20-2015)
Old 04-20-2015, 12:49 AM #47
Betsy859 Betsy859 is offline
Junior Member
 
Join Date: Jul 2013
Location: Maryland
Posts: 38
10 yr Member
Betsy859 Betsy859 is offline
Junior Member
 
Join Date: Jul 2013
Location: Maryland
Posts: 38
10 yr Member
Default

Quote:
Originally Posted by drtom80 View Post
Hello, I received a fetal stem cell tx a few years ago and saw very little improvement. I am going to try adult stem cell tx in a few months, and will post shortly after. As a side not, be careful dealing with a Dr Paneri, all he did was take my money and sent no products. Take care
Drtom, thank you for your input I'll be interested in the stem cell treatment you are getting. Where is this being done and by whom? Cost?
Best of luck wishing you the best.
Betsy
Betsy859 is offline   Reply With QuoteReply With Quote
Old 04-12-2017, 12:13 PM #48
rempatterson rempatterson is offline
Junior Member
 
Join Date: Mar 2010
Location: New Jersey
Posts: 28
10 yr Member
rempatterson rempatterson is offline
Junior Member
 
Join Date: Mar 2010
Location: New Jersey
Posts: 28
10 yr Member
Default cycling as neuroprotection as well as symptom management

One treatment that research is showing us can have a neuroprotective effect is cycling. A recent broadcast on NBC Nightly News features Dr. Jay Alberts explaining what his research has found: How Patients Are Using Cycling to Slow Down Parkinson’s - NBC News . We don't have to wait for the FDA to approve a bicycle.


Quote:
Originally Posted by reverett123 View Post
Exciting research breakthroughs are all well and good for future generations, but if you are reading this they probably aren't going to arrive in time to help you, today's PWP.
rempatterson is offline   Reply With QuoteReply With Quote
Old 05-24-2019, 04:27 AM #49
Robert Reny Robert Reny is offline
Newly Joined
 
Join Date: May 2019
Posts: 1
5 yr Member
Robert Reny Robert Reny is offline
Newly Joined
 
Join Date: May 2019
Posts: 1
5 yr Member
Default New Hope for People with Parkinsonism

I am new to this forum, one of my friend who is suffering from Parkinson, his suffering made me join this forum in search of a proper answer.
Robert Reny is offline   Reply With QuoteReply With Quote
Old 05-24-2019, 03:42 PM #50
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Hi Robert

Welcome to NeuroTalk .

The Parkinson's forum is very active; I hope that you will be able to learn things here which will help you to support your friend.

Best wishes.
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
OT - Today's Quote befuddled2 Bipolar Disorder 0 05-22-2010 02:27 PM
Today's The Day Alffe Survivors of Suicide 16 10-09-2008 06:16 PM
And from today's NY times-- glenntaj Gluten Sensitivity / Celiac Disease 2 05-08-2007 10:31 AM
Today's fun question! MomOTwins Autism 4 10-24-2006 06:02 PM


All times are GMT -5. The time now is 06:22 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.