Parkinson's Disease Tulip


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Old 08-26-2013, 12:14 AM #25
David H. Blatt David H. Blatt is offline
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Join Date: Dec 2012
Location: Corvallis, Oregon, USA
Posts: 6
10 yr Member
David H. Blatt David H. Blatt is offline
Junior Member
 
Join Date: Dec 2012
Location: Corvallis, Oregon, USA
Posts: 6
10 yr Member
Default challenge conventional expectations about Parkinson's disease

To reverett123
i have read some of your 3600 posts -- and I agree with your basic attitude that its up to us to do waht we can rather than waiting for researchers to make the miracle breakthrough they keep telling us they will make if only we donate more to fund their research.

In 1997 I was 41 years old when I was diagnosed wiith Parkinson's disease, in 2010 I began leading exercise classes for people with Parkinson's disease, and in 2013 I participated in my first masters slalom and giant slalom ski races.

Vigorous exercise can enable us to beat expectations.

David


Quote:
Originally Posted by reverett123 View Post
Exciting research breakthroughs are all well and good for future generations, but if you are reading this they probably aren't going to arrive in time to help you, today's PWP.

However, there are things available today that have enough research behind them to warrant consideration. I propose this thread as a sticky to keep track of these so that they are not lost.

The type of treatments I am talking about carry varying amounts of risk and no one should assume anything about these. This is serious stuff and the decisions you make about them will determine the course of your life. Even choosing to ignore them will be a momentous one.

This is the place for promises not of just borrowing time with neuroprotection but of putting things to rights with neurogenesis. But that is where risk comes in. Things that trigger regrowth of nervous tissue could also trigger overgrowth and resulting tumors for example.

This is not to say that one should avoid risk - one cannot. And bluntly put, doing nothing but the treatments offered by our neuros has a clear end - and it is not pleasent. Each of us must decide for ourselves with the best information available to us. I hope this thread will provide a place to gather that information.
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