Parkinson's Disease Tulip


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Old 04-06-2011, 10:17 AM #21
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I really feel and fear for my fellow PLWPs living south of the border. Rick instead of saying "to hell with them", how about "Parkinson's on them". Of course, they don't need to worry........they have good healthcare.
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Old 04-07-2011, 05:14 PM #22
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Default Bill Moyers 2009 TheHealth Care Lobby

http://dailybail.com/home/bill-moyer...are-lobby.html
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 04-09-2011, 09:56 AM #23
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Quote:
Originally Posted by ol'cs View Post
Just like our disease, and our personalities, our lives are all so different. I'll bet that anyone with an established life, support of family, financial independence, and all the coping skills in the world, plus early in this disease will and can feel a sense of hope. For those who are treated like they "aren't disabled", broke, abandoned by most family and friends, swamped with "things to do" often just to eat and find a warm place to be, and otherwise "crippled" by thousands of possible things going bad, or wrong, or just pain, depression, and the inability to move, and are advanced and alone to cope by themselves, undermedicated, death seems like a release. You who know what i'm talking about, often never post, but still read this forum. Drugs can buy you a few years, but won't halt progression. In the USA, if you are below the poverty line, you are on the street, unmedicated, and have no access to a computer like US, the more fortunate YPWP, life IS NOT worth living. No amount of talk will or can even send a kind word their way. It is not for me that i posted this thread, it is for the forgotten, those who suffer in this country, like tsunami victims, or war victims. Pure despair. No more reason to live. Now i still have reasons to be alive and my pains are adequately taken care of by drugs that i can still afford, and i can pay for my drugs, and i can afford a roof over my head, and still keep warm and adequately fed and have a nestegg for the future when PD stops my breathing.
I fear for a country that doesn't care for it's chronically ill and wants to cut 1 trillion from medicaid. It is similar to those who come back from war, beaten and psychologically suffering silent trauma, losing everything, and nowhere to go and nobody to care about them. They might as well end their lives, because they shoot horses, don't they?
hey chuck,
i have been one of the forgotten, "forsaken" by all, and Gods alike.

i've taken several hits, heart attack, high blood pressure, cancer scares, lost health, family, "friends" and can only wonder why i was brought back from the edge of death to live with this parkinson's disease.

i have no answer, no reason why, why not me, or other.

all i have is: i am supposed to be here.

so i make the best of it. why the f not?

life is short. our time here on earth is but a blink in time.

i don't think it's appropriate to expend what time i have, bemoaning, expanding upon my losses, if i have gained nothing but perspective, something good may come from my time here.

i use 400 year old words like mayhap, would rather not be the center of attention...

i dunno, it is somewhat disconcerting that 1000 people have read your post, a stray few seldom reply.
hope this helps
tammy

Last edited by toadie; 04-09-2011 at 11:46 AM.
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Old 04-09-2011, 01:09 PM #24
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Tammy (and others)-

My understanding is that a certain number of those viewers are actually "bots" for the search engines. Would that Ol cs could claim 1000!
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 04-10-2011, 11:04 AM #25
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Quote:
Originally Posted by reverett123 View Post
...to me, at least, that the US is one of the worst countries in the world to be if you have a serious, incureable illness. The tiny bit of safety net that exists is constantly under threat from some jerk who thinks that he will live forever and so, in his selfishness, stands ready to the even those shreds to his simpleton followers to advance his own career. To hell with the lot of them.
Ranked #37 smack between Costa Rica and Slovenia. Now that I know MDS need do anything beyond hang out a shingle with that acronym on it...well, let's just explains a lot of the disparity we receive in our care.

Laura
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Old 04-13-2011, 05:26 AM #26
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Default A platitude to ponder.

.
.
There is no way to happiness. Happiness is the way."


- Thich Nhat Hanh
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"Thanks for this!" says:
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